Recent content by Shatzie

The extreme fatigue that came on you suddenly is a symptom of MG, so are the breathing problems. When an MG patient stops breathing and has to be hospitalized and intubated, it is considered a "Crisis". I have the muscle spasms and twitches also. Last week was a very stressful week for me and...

I would check into being tested for Myasthenia Gravis.

I did everything right including laying flat for 24 hours and still got a severe headache because they had to stick me five times. The radiologist who performed the blood patch told me there was nothing that I could have done to prevent the headache, because it was inevitable that I would have a...

I live in Tulsa, too. What neurologist(s) has he been to? I would really recommend getting an appointment with the MDA Clinic in OKC. They have an ALS Specialist there that I still go to, although he no longer thinks I have ALS.

My speech sounded like I had had a few drinks or a strong pain pill. Now most people don't notice I have a problem. Quite often there are days that it feels absolutely normal to me, but I usually feel like I now have a slight lisp. After I went on Mestinon, my swallowing improved so much I...

Although there are several medications for MG, the mildest and first medication that you are given is Mestinon. When I went to my new neuromuscular specialist last June, he noticed that there had been no progression in the four months since my diagnosis except that my FVC went from 96% to 94%...

I have learned from experience that when you get a lumbar puncture or spinal tap, you should insist on having it done in radiology. I was diagnosed at a ALS specialty clinic, but they had to stick me five times to get enough fluid to test. Then I had a severe spinal headache for the next 24...

B-12 I was told by my doctor to make sure to get sublingual B-12, the liquid or tablets that you use under your tongue.

...I DO NOT have ALS. My neurologist said that since I have shown no spacticity and had no progression since my diagnosis, that I do not have ALS. He is still not totally convinced that I have MG though. He ordered one more antibody check. If that is negative, then I will have a blood test...

Thanks for the message, I just saw it. My appointment is next Thursday, April 30, to hear the latest from the neurologist at the MDA Clinic. I make sure and post so everyone can know what he said.

My appointment is next Thursday, April 30. I had what I call a "flare-up" a week ago Friday and spent the entire weekend in bed. Extreme fatigue came out of nowhere that made me feel like I was under anesthesia. I literally could not wake myself up after I took a nap and lay there for over an...