Recent content by Shaker

Yes it is.

The site isn’t uploading them. Sorry

I’ll try to add them here. Thanks

My wife recently passed from ALS and I need to donate this wheelchair ramp to a PALS. That was the arrangement when I acquired the ramp. It’s a high quality ramp with rails. The whole ramp disassembles and can be easily reassembled (bolted together) by anyone handy. Please see the pics. There...

Jzygrl - I totally empathize with you. My wife of 35+ just passed 4 weeks ago. I feel empty and hollow without her. The disease took everything from her and I have to come to the realization that she was indeed suffering near the end and would be selfish of me to have her continue a very...

Romeosc - that is really great news for you. I hope your progression is indeed slowing down or even better stopped. My wife thinks that the Radicava is helping her as well. She is in the middle of her second cycle. I'm hoping it works as she is affected in several key areas. Good luck with your...

Well after 4 1/2 months we FINALLY got started on the Radicava! But, the day before my wife's 1st infusion was to occur, Option Care tried an end run to cancel the order on both the medical and insurance parts. It was nothing but a small miracle that one of the Option Care employees was able to...

Dgnk - I think you have the right idea about heading south. The warmer weather will certainly do you a lot of good. I'm seriously thinking of doing the same. We are "supposedly" in the final stages of obtaining the Radicava and the infusion of same. I'll believe it when I see it. Pushing 4...

Well I didn't think it was possible to go beyond the 3 month waiting period for Radicava, but it indeed has happened. We were just notified that my wife is now enrolled in the Searchlight Support Out-of-Pocket Assistance Program. We were also informed from my wife's insurance company that they...

Well here's our update after 2 months of having the doctor at our clinic write the script for Radacava be prescribed for my wife. Option care is still claiming that the clinic doctor hasn't returned several forms. I'm not sure how that is possible at this point as they are very responsible and...

Thanks Dgnk - Here's one for the books. I had a great opportunity to speak with an ALS insider (I don't want to identify this person by name or position) yesterday in person at great length. The upshot is that the roll out of this drug and subsequent administration was and is totally botched...

Any progress, Kristina?, or Shaker? Not yet! We are just about 2 months in from when Radicava was prescribed. One hand just doesn't seem to know what the other is doing. I'm just so amazed at how absurd this whole process is. To make a quick comparison as to how my health care works as opposed...

What a Nightmare! Searchlight boondoggle If having my wife being diagnosed with ALS in July (after being misdiagnosed for a few months with other maladies) isn't bad enough, the freakn' nightmare of trying to get her the new medication Radicava seems almost as bad. I can't believe the...