Recent content by sh789

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    Run out of resources, help, and health

    I'm so sorry for the pain you're going through. You won't be any help to your mom if you are not healthy. She may not understand why you would put her in a nursing home, but at this point, it sounds like she's questioning everything you're doing, so you don't win either way. It sounds like...
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    Hi Diane, My mother in law passed away this morning. I honestly can't believe how quick it...

    Hi Diane, My mother in law passed away this morning. I honestly can't believe how quick it happened.
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    1:18 am

    At 1:18 this morning my mother in law passed away. Everything happened so fast yesterday I still can't believe that I am even writing this. She had some labored breathing in the morning and it went from there. She went peacefully and I know that she was ready, we had seen the signs but didn't...
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    Hi bemindful, At 1:18 this morning my mother-in-law passed away. It is completely surreal...

    Hi bemindful, At 1:18 this morning my mother-in-law passed away. It is completely surreal writing this. But we knew that there would be a time that we wouldn't be able to meet her needs and we were going ahead with Mediaid paper work. That way we would have everything ready for when that time...
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    nursing home vs. home care?

    Wow! Well I definitely want to meet in September. I haven't gone to any support group meetings, so it might be nice to speak with people in person about things. Not that this forum isn't wonderful...I've learned so much from it and have felt like I'm not alone with this :)
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    nursing home vs. home care?

    Hi Dianne, I actually work in Fredonia at the middle school! Maybe once the school year starts we could meet up? We are currently in the process of hiring people to stay with my mother in law while I'm at school. I think we found some good ones. However, I would love to talk with you and I...
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    Residential Care for ALS patient? When?!

    We are in the same decision making process with my mother- in-law. Right now, according to hospice, she qualifies for a nursing home as she is unable to to care for herself in any way due to loss of arm function, uses a peg tube, relies on oxygen, and has recently started using a wheelchair. I...
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    PALS anxiety/panic attack

    We just started xanax last night and she slept for almost the whole night. She even slept in her bed for the first time in 8 months! She has extreme anxiety about the hospital bed and since she got her feeding tube in November, she has been sleeping in her reclining chair. We would put her in...
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    PALS anxiety/panic attack

    Thanks bemindful. We noticed incontinence when I would give her a full dose, which I think was directly related to muscle weakness. Hospice sent us a different anti-anxiety med today so hopefully will see better results and my m-i-l will get a better nights sleep. She just refuses to sleep at...
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    PALS anxiety/panic attack

    What kind of reaction did your husband have? My mom in law woke up last night after taking it completing in another world- shaking, telling us her shoes were broken, and she kept trying to write the time because she swore something was wrong with the clock. We gave her some morphine to calm her...
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    Anger and ALS

    You might want to get in touch with hospice just so you have some resources at your disposal. We now have daily home health care aides coming in (only an hour a day but it helps), a weekly nurses visit, and a social worker to help us try and make the best of this terrible situation. School...
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    Anger and ALS

    I haven't been dealing with this as long as some of you but I had to learn really quickly that I had to stop taking everything personally or I was going to go crazy. Regardless of the whether or not there is a diagnosis of FTD, this behavior is probably not going away. I was truly going to lose...
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    nursing home vs. home care?

    thanks! We met with our Hospice Social Worker this morning and it appears that my mother in law doesn't qualify for Medicaid. We had been told a week ago that she would qualify and then she could potentially move to a nursing home when the time came. However this isn't the case. So we've...
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    PALS anxiety/panic attack

    Nighttime is always the hardest for my mother-in-law. She wakes up shaking and crying out that she is afraid. We give her anti-anxiety medication (lorazipam I think) and that calms her down and puts her to sleep. It has helped her quite a bit. I can't imagine what she must be feeling and am...
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    nursing home vs. home care?

    We are struggling with knowing what is best for our PALS. I have off during the summer since I'm a teacher and have been able to stay home and take care of my MIL, with help from her sister who comes and stays. But when September comes, this just won't be possible. We know at some point we just...
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