Recent content by set me free

Anyone use other than single use of Nutri bag for tube feeding? I am trying to look for option for more environmental friendly and save up some supply cost. I am thinking of 500 ml glass syringe or nutri bottle with food grade plastic but seem no commercial product out there in the market. You...

Hi Laurie, Thank you for your response. The humidifier level just setup as 1 and I believe the heat did not come from it. While the sales person brought it to calibrate he also replace it with a spare one and I did not feel heat but just warm feeling so I wonder. Currently there is no burn...

Dears I am not sure if this is normal. We bought this machine BIPAP PhilipRespironic A40 in June 19, after annual maintenance In June this year I heard a weez sound and then we end up need to change blower in July. I doubted why the calibrate could not detect it. Recently i felt heat on the...

Dear All, Thank you all for responses to my message. My mom was released from hospital Oct. 4th. She actually had a lung infection that obviously seen in the chest x-ray. (but no fever - very strange). and the urinary tract infection as well. After a course of anti-biotic treatment, the blood...

Thank you Nikki. Yes they did series if test and today we will meet the neuro doctor, hope she could shade on some light.

She is now 78 y/o

hi all Are there anybody here experience hypertension and increasing in heart beat in advance state of als ? My mum has been suffer with ALS for 11 years and now she has severe hypertension 190/109 and heart rate range from 90+ to 130 bpm. both the blood pressure and heart beat are swing...

Miss you Annie.

Hi AMC I understand how you feel, anxiety, fear of having the so called terminal disease, frustrated of having no one can give you a clear answer. But you need to know als is not like having a fever that the symptom show up 1-2 days once you got infection. If the symptoms are mild (early stage)...

Rest in peace Al, thank you for your hard work and years contribution to the forum so we pals and cals have a wonderful place like this forum to help all of us to go through the difficult time. You will be missed forever. My honour knowing you.

Hi Natacha,my name is nid im from thailand. Heard that your husband also has the hard time breath when sitting up, how is he now ? Does he use bipap and does it help?

I'm so sorry to hear this. It's shock news for me. Richard was a kind hearted person he was one who always answer my question and gave me advices on my mother condition. RIP my friend.

Really upset and feel helplessness while expect the bipap is able to help her but it seem not.

Thaks all for your replies, No she did not have the pneumonia. I am quite sure as i also had her admit to the hospital to check couple of weeks ago. Actually the first intention to have her in hospital was to have doctor monitor while she use the bipap machine, as she complaint it did not help...