Recent content by sefarion

  1. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Hello everyone! I just come from the hospital and i have the final statement for my problems! First of all thanks for all your kind words and wisdom, it helped me a lot. The second needle EMG with a specialist in MND disease throw off from table ALL my worries about ALS from first EMG. YAAY...
  2. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Once again hello, Thanks for your reply and kind words but in my country, we have specialized centres which are focused directly on treating MS, so if they thought that I have MS they would send me there (my neurologists actually discussed my symptoms and test results with MS clinics before...
  3. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Hello, thank you kindly for your time and answers! <3 I also thought after spinal tap results, that it's going to be something with an autoimmune disorder, but I don't know then why they are sending me to MND neuromuscular specialist. :( Well, I will know more in the middle of September they...
  4. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Hello, I have another small update: I got results of my spinal tap and it's (I hope that I translated it right): Slight elevation of total protein in basic tests There is an intrathecal oligoclonal synthesis of all immunoglobulin heavy chains Slight elevation of inflammatory markers in...
  5. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Hello, I hope that everyone fights hard and has a nice weekend :) Sorry for late respond I was too tired after a spinal tap and too sad to respond. I have sent only what I got and have no idea what it does mean.... ☹ Now I have tried to edit it to "look better" and reupload it with full doctor...
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  9. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    There is emg report, i hope that is readable..
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  14. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Thanks for your supportive words ❤ i will try to get copy of emg results today so i could post them here... I didnt have issue to accept cancer diagnosis and fight for my life 4 years ago... But this.. Is different.... May i ask which (if) any disease mimic my symptoms? (based on symptoms and...
  15. sefarion

    Progressive neurologist issues, may i ask you for opinion?

    Hello, i have a small update. MRI spine was also clear, results of spine tap should be next week... Meanwhile my twitching and cramping keep gettings worse, i also feel so weak... (i cant hold my phone just with my arms for long time for example) I have asked directly today my neurologist...
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