Recent content by seb88

Hi - I have had twitching in my left forearm (the under side) for about 6 weeks now which I’ve been trying to put out of my mind but it’s worrying me as it’s isolated to that muscle only. I am left handed. It seems to happen more when the muscle is being used, such as texting with a bent arm...

Thanks Nikki. My therapist has told me the same. Appreciate your response.

Thanks ShiftKicker. I am getting help for my anxiety, I saw a therapist yesterday so I am hoping it will help. What I was hoping to get from my post was just whether in your experience my swallowing problem is how ALS swallowing problems present. Many thanks

I am sorry to be back here but my symptoms keep getting worse and I would really appreciate some advice. I’m struggling to swallow small pieces of food, they keep getting stuck in my throat. I can feel them and then if I stick my fingers in my throat they come back up. Things like small pieces...

Thanks ShiftKicker, and apologies for starting a new thread, I couldn’t work out how to find this one! You’re right that my anxiety is high and I think regardless I need to seek help for this which I am going to pursue. I have been discharged from my neurologist on the basis of a clean limb EMG...

I noticed a weird feeling when running, almost like my throat was narrowing so I came home and had a look and my soft palate doesn’t stay lifted when I say ah. It does lift initially but if I say a long ‘ahhhh’ the uvula drops half way through the ah. Is this a sign of bulbar ALS? Should I be...

Thanks so much Laurie, I thought that would be the case!

I had my follow-up with my neurologist yesterday. I just listened really to what he said which was that the doctor checked 16 muscles on my EMG, all of which were completely normal and all of my blood results were good. He did say often they checked the tongue but obviously hadn’t felt the need...

I apologise for the photos but I feel like I’m driving myself insane with worrying about bulbar ALS. I’m not really sure where it’s come from as I was quite rational when I initially went to the neurologist about my limb symptoms but I seem to have gone down a total rabbit hole. I’ve a 19 month...

Thanks both. My appointment is next Thursday. Would any bulbar issues have shown up on my EMG? I don’t really want to raise this with my neurologist if it’s a non point as Bestfriends14 suggests!

Sorry to be back here posting but I had an odd conversation yesterday when explaining to a friend about my recent health scare. He raised concern that the doctor hadn’t EMG’ed my bulbar muscles despite my having twitching on my lips and occasionally getting the feeling of food being stuck in my...

I feel quite emotional writing this post but the thing that annoys me about this forum is all of the DIHALS who write their posts and don’t update when they’ve been cleared. I was sat there thinking these symptoms sound like mine, what happened to them?! Anyway! I don’t have ALS!!!! I had a...

Thanks Nikki that is very reassuring. And thanks for coming back to me so quickly, I really appreciate it. Sorry I also forgot to ask whether the EMG can tell the difference between ALS and other spinal problems? From a previous MRI I know I have disc degeneration in the cervical spine with...

Hi, I just wanted to post an update since I’ve seen a neurologist today. The neurologist performed a very thorough clinical exam and doesn’t think it is ALS. He said he can’t be 100% sure but he would put it in the high 90s that it isn’t. The clinical exam was normal. He’s ordered an EMG which I...

Thanks for your reply Nikki. Sorry I did actually mean to say that surely weakness comes before atrophy, that makes much more sense logically! Do you think I need to be worried about the leg twitches in general but particularly after walking? Thanks again for your reply, I really do appreciate...