Recent content by seanmucci

Hi Dank,been slow and steady my self for several years , patience is needed my friend which i believe you have! you are not alone as st.paul said cast down but not forsaken!

nothing is with out a fight but since you a have a "definite" diagnosis of PLS you are in pretty good circumstance for disability since it is a progressive disorder, my best wishes for you and your family!

my family is from the boston area,my uncle louis was a popular jazz musician frm the northeast for many years!! i have PLS ,but it still stinks!!!

when do expect to be done with the results?,just wondering

Just A Silly Question I Suffer With A Slow Progressive Form Of Als.i Have Had Some Moderate Twiching In On My Left Eye Lid For A Couple Days .has This Happend To Any One Else.small Question In The Scope Of Life .stay Strong And Focused Fellow Als Warriors I'm Praying For Us All

Rib Cramps At Varios Times During The Day Usually When I'm Sitting Or Driving I Get Twisting Cramps At Right At The Lower Side Of My Rib Cage And It Feels Like Someone Is Ripping The Muscle Out Of Me It Usually Last One Or Two Minuts Then Subsides.but As You Probably Know By Now Spasams And All...

Can Someone Let Me Know Why My Als Forums Accsess Has Been Resticted Thank You

Hey Guys And Gals I Have Another Emg On Nov 2 And A Special Consult With My My Mda Neuro And Another Neoro Specialist At The Als Clinic.my Last Emg Showed Changes In My Motor Nerves And Clinical Changes Was Told At That Time It Was Lower Motor Neuron Syndrom(lmn ).my Neuro Wanted To Consult...

Als V.s. Ms Response In Ms The Mylenen Sheafe Out Side The Nerve Is Damaged But The Nerve It Self Is Alive And Well.so When The Outside Of The Nerve Heals It Produses A Scar Then That Causes A Disrtupion In The Signal Sent To The Brain.in Ms Both The Sensory Nerves And The Motor Nerves Are...

Get Emg I Would Get An Emg Specialist Affiliated With A Neuromusular Clinic ,many Times Neuros Are Ignorant To Neuromusular Disorders,als Find A Neuro Affiliated With The Muscular Dystophy Association.don't Panic But Avoid Any Unnessecary Obstacles. Gods Speed.

Symtoms My Syntoms Evolved As Followed: March 05 Stiffnese In Left Thigh,june 05 Fasciculations In Left Thigh And Calf,september 05 Atrophy Starts In Left Thigh,nov 05 Fasciulations Start In Left Tricept,march 06 Atrophy Starts On Left Tricep,oct 06 Chest Muscles Start To Atrophy,through...

PLEASE STAY IN CONTACT WITH US YOUR SUPPORT IS NEEDED BY YOUR ATTITUDE AND COMPASSION YOU QUALIFY AS A POSSIBLE CARE GIVER.

To Vmd Just For Clearification There Have Been Clinical Sighns For Over A Year Now And Just Teusday The Emg Suggested Lmn Damage I've Had Umn Sighns For Almost 2 Years

As I Wrote On My Previous Letter Titled Something Neoromuscular .my Neuro Called Me In For A Special Meeting Because Of Changes On My Emg. The Results Have Shown Motor Neron Damage This Was My 3rd Emg At This Facitity Which Is A Certified Als Clinic.for Some Time I Have Shown Slowly Progressive...

Reply Ucla Visit I Was Pleased To Know A Neurologist Would Sped 2+ Hours With A Patient.sad About The Diagnosis.i Will Know My Fate July 24. The Als Dr. At Mass General Hosp Will Sit Down And Talk To Me. After 2 And A Half Years Of Predicting And Waiting But That Is Some Of The Cross Many...