Recent content by sdsyd

Hi everybody! Sorry for the gigantic lag in updates. I must admit I have been trying to stay away from this forum so that the ghost of Xmas past doesn't haunt me anymore, if you know what I mean. I do come and check in every once in awhile to see how folks are doing. I do miss the friendship...

Hi Markpnw- Have you had any test to rule out MS? Those sound like MS or (maybe?) CIDP symptoms to me, but I am definately no Dr. Lots of automiinue disorders and neuro disorders are very hard to figure out. My advice is to Hang in there and keep pursuing a diagnosis, getting mroe referrals is...

I know this is an old post, but just had a lady call me ( afriend of a friend) who sells Reliv. Any more info out there about it since this post was last made? She told me it was not a cure for anything but helps the body mend itself and is helpful for a vriety of conditions. It is very...

oh Al- gotta love you, man. I am one who has been like a leprachaun on this forum. Or better yet- sometimes ya feel like a nut- sometimes you don't. I have NEVER been diagnosed with ALS, but I did have a "suspect MND" and other issues, and continue to be in limboland. That is until July 9th...

No need to respond! ha. No time to read our replies, probably! You are an amazing woman, mother and wife. Congrats on all of the milestones~!~! Happy belated B-day~! Love, Cindy

Amazing news! i am so proud of you guys for forging ahead through brick walls to get this surgery done~ I am sorry he is in so much pain, but SO glad he gets to go through rehab and get stronger! Hang in there, keep us posted and we'll keep checkin in and praying for you guys! Love, Cindy

Lorie-You are such a brave and confident person! Best wishes and prayers as you look this thing square in the face. Lots of people pulling for you- Love, Cindy

I just have to chime in here, too. I agree with the sentiments posted here. I am still in undiagnosed limbo. I recall all too well the PANIC I felt when my neuro suggested it could be the onset of MND. For along time, I just lingered and read, until I felt it was safe to share my journey...

Just wanted to wish all the great Dads out there Happy Fathers Day. I hope your day is enjoyable and you feel surrounded by love and APPRECIATION! Love, Cindy

Happy happy happy birthday to you!

HOO-RAH! keep em coming. Were you the one we teased a long time ago for being a friend pimp or am I mistaken? Love from South Dakota Cindy

Oh my goodness. This is getting WAY out of hand, but I LOVE it. You folks are HILARIOUS. Make sure you set the scene in a state that Medical Marijuana is legal and you musn't forget to add in all of the miracle cures gone haywire. (Physical Zaph has to take a potty break right at the PEAK of...

Zaph- you are on of a kind, that is FOR SURE. When I smile- my mouth is crooked and my whole face twitches. Brushing teeth and watching this in the mirror is HIDEOUS. Im thinking I could scare the hell out of somone if they hire me when the Fair comes around in August. Love, Cindy

Hi guys, Hope everyone is having a happy Summer so far and enjoying time with those you love. I have a question about onset of breathing troubles. I am not Dx with anything. First was suspect MND, now suspect CIDP, with follow up July 9th at University of Colorado ALS/MDA clinic. The only...

Best of luck Lorie- I am proud of you for finally looking out for yourself. Lifting prayers for at this moment. Love, Cindy