Recent content by SDG-PAX

Thank you so very much. I really appreciate it!!! Have a great day!

Hi everyone. I am new here. I have been trying to learn more about my diagnosis and others experiences. I appreciate all the sharing and vulnerability. When I do a search, my results are filled with “could this be als forums.” Is there a way to weed those results out of the search as they seems...

I’m so sorry to hear that. It makes me feel like I’m crazy. It’s all so confusing. I’m learning how to slow down and listen to my body. It’s harder than I thought.

Thanks so much for sharing. I’ve been noticing a difference when I tend to over do it in a certain day. I usually don’t sleep as well that night either. I’ll have to check on the FALS mutation. I really appreciate it!

Thank you so much. This is my second opinion now. I love my current neuromuscular doctor. He is amazing. Thanks for the information. I’m trying to go easy, I’m just in such a brain fog. The genetic testing is looking for a disease called Kennedy’s disease that seems to fit family history. It is...

Hi. I’m new here, so, please forgive my ignorance. I have been diagnosed with MND and am currently going though genetic testing to try to hone the diagnosis. I have both UMN and LMN signs. I think I’m still in denial. So, I have a strange question. At this point, is it normal to I have good days...