Recent content by scottishmum

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    Hi there Sorry I haven't been on recently was away to Florida with the family . Had a great time...

    Hi there Sorry I haven't been on recently was away to Florida with the family . Had a great time but back to reality now. Got a couple of appointments this month 2 more mri scans and then back to the neuro. Not much change finding it more difficult to get in and out of bed but I am determined...
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    confused by letter...... can anyone explain please.

    Hi Alyoop , thanks for the info , I can see how it may trigger a seizure as when they place it against your head and pass the current through the sensation is very strange feels like your head is shaking inside! , but less painful than the normal NCV Test . Hopefully I'll speak to someone today...
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    confused by letter...... can anyone explain please.

    hi scotslassie just read your post thanks for that info , i have met laura previously at the clinic and yes i am at the SGH will try and contact the consultant today , will let you know how i get on. thanks again , this forum helps so much with information and support.
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    confused by letter...... can anyone explain please.

    Hi scotslassie , us Glaswegians get everywhere! x
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    confused by letter...... can anyone explain please.

    Thanks guys , was a bit surprised to receive the letter , i had received a clinic appt for August a week ago . He did say at the last appt if the test showed anything he would start me on rilutek and make an appt with the MN nurse so I don't know what to think . I know he was looking for upper...
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    confused by letter...... can anyone explain please.

    after visiting my neuro in march he said that due to previous ncv and emg test results and my progression over the last 4 years he was sure it was Motor Neuron Disease. after explaining all the types he then said in his opinion he thought i had ALS but was going to do a further nerve...
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    newly diagnosed

    Hi john1 , I am very grateful that I am still mobile after this time. ,especially after reading On here how quickly it can change for some . I am hoping that it continues this slowly for my family's sake.
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    newly diagnosed

    Thank you for all your wonderful words of support and encouragement , Just knowing your not alone is so comforting , I am usually a very strong willed person and think I'm still in shock/denial about what I was told. One thing I keep telling myself is I will not let it win , I will fight it...
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    newly diagnosed

    thanks , i am so glad to have found this place , its not something you can easily talk about but here it everyone is so supportive
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    newly diagnosed

    hi all , i have been lurking on here for the past few months as i thought the dreaded diagnosis was coming. my symptoms started almost 4 years ago with right foot drop which progressed upwards in my leg , with left foot symptoms starting a year ago . i now have left foot drop and am continuing...
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