Recent content by SCOTTDSC

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    I had a bad day yesterday. For the first time, I was unable to walk up my steps to my bedroom...

    I had a bad day yesterday. For the first time, I was unable to walk up my steps to my bedroom, even with help. Unless things turn another direction, that means I'll be confined to the first for my house with no full bath! This was very upsetting to me. I have a building contractor coming over...
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    Newly diagnosed. Hopelessness to acceptance?

    Jeannie, I too, was diagnosed with ALS in March 2012. I'm trying to maintain a positive attitude but like you it's very difficult some days. I have found solace in different forums online. My disease also seems to be progressing faster than I can keep up with it. I live in a two-story home with...
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    P. S. I'm still scheduled to go to U of M on May 2. My symptoms seem to be progressing as my...

    P. S. I'm still scheduled to go to U of M on May 2. My symptoms seem to be progressing as my left hand is now curling and my left arm is getting very weak along with my neck muscles also. This disease definitely is not for the meek! Anyways, sounds like you had a great Easter! Family is always...
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    Hi Peg! Great to see you finally found me! Let me see if I can answer all your questions. I got...

    Hi Peg! Great to see you finally found me! Let me see if I can answer all your questions. I got my orthotics about 2 1/2 weeks ago, and hated it! It made my foot incredibly uncomfortable and made it very very difficult walk, the exact opposite of what is expected. I went back last Thursday and...
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    Peg, On a happy note, I was fitted for my orthotic yesterday. I thought I was getting one for...

    Peg, On a happy note, I was fitted for my orthotic yesterday. I thought I was getting one for both ankles, but it turns out I getting one only for my right ankle. It was pretty wild! The orthotist said it should be ready a week from Monday! I'm really looking forward to it as Tom said his AFOs...
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    Peg, Let's wait until I hear from ALS clinic. They said that was first available date but they...

    Peg, Let's wait until I hear from ALS clinic. They said that was first available date but they always have cancellations. I don't know when they'll be contacting me about this so I'll have to play it by ear. Thanks for the complement. I try to remain positive about this disease and also remain...
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    Peg I've heard good things about Dr. Little, but that goes for nearly everyone at UM. Scott

    Peg I've heard good things about Dr. Little, but that goes for nearly everyone at UM. Scott
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    Peg, I'm not scheduled to go back to until 5/2, but will probably rescheduled to an earlier...

    Peg, I'm not scheduled to go back to until 5/2, but will probably rescheduled to an earlier date. I'll be going up to the ALS clinic that day for my initial evaluation. It's in the exact same building where I met Dr. Teener the last two times I was there. Jack, the social worker for the ALS...
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    Hi Peg! Well, here I am on the ALS forums. Looks like you been on this since 2006. Pretty cool...

    Hi Peg! Well, here I am on the ALS forums. Looks like you been on this since 2006. Pretty cool! Last few days have been a bit of a *****. Yesterday I felt great in the morning, but ended up falling three times after 4 PM and then in the middle of the night was too weak to stand up in the...
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    Tom, Thanks for the welcome! I too, have a ton of respect for Peg. I just met her recently...

    Tom, Thanks for the welcome! I too, have a ton of respect for Peg. I just met her recently, within the last two weeks. It sounds like our ALS diagnosis followed a similar path. I'm not familiar with the term leg onset, but I'm only five days into finding out I have ALS! This is the most surreal...
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    Tom, My name is Scott. I was just (3/14/12) re-diagnosed w/ALS. My previous diagnosis was MMN...

    Tom, My name is Scott. I was just (3/14/12) re-diagnosed w/ALS. My previous diagnosis was MMN. Your friend Peg B. (now mine!) suggested suggested I contact you as you've walked down the same path three years ago and thought you may be able some insites. I met Peg on a MMN forum. She seems to...
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