Recent content by scc

  1. S

    Question About End Stages Of ALS

    I feel so inadequate even responding My heart breaks for you. Your post brought tears to my eyes. I have no answer for you and I don't even feel like I should post since I'm still undiagnosed. I just come here to learn from others. My prayers go out to you and your family. You are...
  2. S

    High Blood Pressure

    Not a stupid ? It means diagnosis
  3. S

    High Blood Pressure

    I don't have a diagnosed so it may not be appropriate for me to answer. I am still mobile but have GREAT difficulty walking. My PT says my high blood pressure is due to the great difficulty I have walking. She says I'm fighting my muscles to stay upright and move.
  4. S

    muscle wasting

    I tried but it said scc, you do not have permission to access this page. This could be due to one of several reasons: Your user account may not have sufficient privileges to access this page. Are you trying to edit someone else's post, access administrative features or some other privileged...
  5. S

    muscle wasting

    What does muscle wasting look like? and is there a place where is usually starts? My GM this weekend noticed some changes in the way my feet looked. In between my big toe and second toe on both feet it looks like the flesh is "sunken". Also on the outside of each foot there are indentions...
  6. S

    MRI of spine

    I'm trying to find out the same thing. I have a lesion at C6. I posted a similar question in the PLS room because I've been dealing with sx for 3 years, so I'm sure it is not ALS but thought it could be PLS. I hope we both get an answer.
  7. S

    What tests are abnormal with PLS?

    Sorry I wasn't more clear Sx started in 04 when I was 34: Fatigue, tripping (drop foot), muscle spasms in legs. Sxs have moved into arms. They feel heavy. I am having muscle spasms now in feet, legs, buttocks, lower - mid back, hands, and arms. I have postitive Babinski. PT says my tone...
  8. S

    What tests are abnormal with PLS?

    Do you have lesions on brain or spinal cord w/PLS? I have 3 abnormal EVPs 1 lesion on spine Slowly declining use of legs Arms are beginning to be affected Foot drop Positive Babinski ATaxia I cannot be diagnosed w/ MS because only one lesion, but TM is unlikely because decline continues. I...
  9. S

    How is ALS actually diagnosed?

    thanks upila Upila, Thank you. That gives me some understanding of what to expect. I appreciate you taking time to answer.
  10. S

    How is ALS actually diagnosed?

    I am currnetly going through a round of tests, and while my neurologist has not said he is looking specifically at ALS, the research that I have done indicates that ALS is one of the diseases that match my symptoms. I had an MRI of my brain on Thurs. On Monday, I will have an MRI on my spine...
  11. S

    How is ALS actually diagnosed?

    I am currnetly going through a round of tests, and while my neurologist has not said he is looking specifically at ALS, the research that I have done indicates that ALS is one of the diseases that match my symptoms. I had an MRI of my brain on Thurs. On Monday, I will have an MRI on my spine...
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