Recent content by Scaredwife

For everyone reading my posts who is freaking out: i just wanted to come on here and tell you all that it’s been over 6 months and no major changes happened. I was wrong and in panick-mode. For everyone reading my posts that’s going through the same thing: anxiety can be a scary thing and can...

Hello everyone, I'm sadly back with concerns about my husband. I know you guys are probably getting really really sick of me, believe me, im also getting fed up with myself. I’m really trying to let this thing go, but every time I do, something keeps popping up. I feel like everyone keeps...

Hoi, ik zag in een post dat je nederlands spreekt en sommige dingen komen me bekend voor. Hoe gaat het nu met je?

Hey guys, Really sorry to be bothering you all here again. I hope you’re all doing well given the circumstances. I’m ashamed even asking you guys for help again, but this forum has been a great support for me. Lately I noticed my husband was yawning a lot, but I thought it was all in my head...

Thank you for your reply. I wanted to come back here and give you all an update, so future members with health anxiety may alsnog benefit from this. I realized how strong the mind can actually be. I was convinced my husband was breathing differently by taking a sigh/gasp every two minutes...

Thankyou for your reply, I do have to say that I find it hard to kind of get out of this adrenaline rush I’ve been in for the past 2 months. I still notice some minor symptoms like mouth breathing with very quick and rapid sighs, and sometimes mumbling, and also the chest pain that makes me...

Hello everyone, I hope you and your loved ones are all doing well, considering the circumstances. Here is another update from me. We visited the neurologist yesterday and she was really sweet. I told her my concerns about the assymmetrical hoffmann reflex on his right hand and she tested his...

Thankyou for your kind response, it gives me some peace of mind to know you don’t see any ALS signs. I’m just thinking like, how many symptoms can be a “coincidence” untill it’s not anymore. The internet tells me a one sided Hoffmann sing is a red flag and she says otherwise. Our pcp told us he...

I’m back again, Thursday is our follow-up appointment and I fell down the rabbit hole again. Partially because not all the questions had satisfyingly awnsers. My husband has a positive hoffman-tromner sign on only his right hand. I know healthy people may have a positive reflex, but when it’s...

Just a quick update: I asked the neurologist about ALS and she did not see any reason to think about ALS. I asked her about my husband having a slightly positive hoffman's reflex, and elevated CK levels but she did not seem to be worried about anything. She did not even feel the need to do a...

You’re right, thank you for being direct with me. So if I understand this clear I shouldn’t worry about ALS? I wanted to push for an EMG, but I don’t want to unnecessarily take up precious medical time from people who might actually need it more, just so my mind is at peace. Do you think an...

You are completely right, I am being horrible at the moment. I try to contain myself. I keep watching him in his sleep, I know it’s not normal behaviour and I feel ashamed even asking you guys here. I truly appreciate you all taking the time to respond to me with everything already going on in...

Also, we noticed an eye twitch in his right eye and a significant difference in strength and muscle in his right upper arm. Is it even possible for ALS to progress this fast? We don’t really know which symptom was first, cause we never really payed attention to it as much as we do now. So we...

Not yet, but he will be referred to one. Neurologist thinks it’s stress. However our own doctor did find weakness on his left side and the neurologist did not. The tongue twitches do seem to get less, only when he talks for a long time or just a lot. He is able to do everything as usual. The...