Recent content by scaredals

Hi All, Well, my husband had his sleep study and EMG. The sleep study showed no apnea but he has to go back because they told him to take his Lyrica..which suppresses movements so they don't know if he has a movement disorder or not (and even with REM disorder it doesn't happen every night)...

Thanks. I will look into these organizations! Yes, my husband is well. I agree his sensory issues aren't that bad however the doctor was extremely concerned because the burning does get very painful and there have been times when my husband has had to put his legs in a tub of ice or stick...

I know they sound like sleep apnea (the obstructive kind...which ALS can cause but I'm not saying that is the case with my husband) but the unofficial results say no apnea happened. The tech isn't the specialist that determines what the results mean but he said that his job is to detect (or the...

Thank you. Actually what brought me here was the twitches but not the way you think. This all started because of problems my husband has sleeping....jerks, twitches and shakes. Of course, not the twitches that have to do with ALS (even though these have started in him since then but that's...

Hi All, So, now I'm becoming very worried about my husband. I posted here last week about his respiratory and wondering if it could be the onset of ALS. He's had some new symptoms since then. He seems to be having all these symptoms and they seem to have started about 2 months ago (most of...

The doctor said he can't rule out ALS until the EMG's are done. He said that sometimes they don't have answers for things (like neuropathy if it's that) but they rule out the big things first...they ruled out MS, stroke, diabetes, vitamin deficiency, Parkinson's, alzheimers, seizures. My...

My husband isn't overweight at all and the noises stopped before he lost weight. He lost 10 pounds in a month, I'm hoping because of anxiety and basically stopped eatin during the day. As for why I'm not worrying about other causes. Its not a stroke or MS, ct scan and mri's ruled this out, dr...

Because my husband is being tested for sleep apnea. He doesn't snore, like Marjorie pointed out with the obstructive kind. Its more like the central kind (there is only this type and obstructive). If it turns out its sleep apnea than it has to be the central kind cause he doesn't snore or gasp...

Actually I was feeling better about it all and was starting to think I was crazy to think it was ALS until Marjorie's post where she talked about the central apnea and ALS and how her husband jerks awake to breathe and made me feel like she agreed with me and this sounded like the onset of the...

Hi Marjorie, That's what I'm terrified of. That they will find out that he has central sleep apnea and it's ALS. I guess from what everyone else says, he doesn't show any other signs...no weakness, no atrophy in limbs....just some twitches that come and go and weight loss that has now been...

Thank you so very much. I can't tell you have stressed out I've been because of all the reading I did on the internet. I had to go on Xanax, or be admitted for a nervous breakdown, because I have convinced myself that my husband has onset respiratory als. I just kept reading that the first...

Thank you guys! What led me to start worrying about ALS was the Internet. Everytime I typed in a symptom, like twitching for example, ALS came up, lost weight, etc. As for the breathing, I think he stops breathing. That doesn't mean he does, it can just be that his breathing becomes less...

Hi All, I appreciate any advice you all can give. I know you can't provide a diagnosis and I'm not looking for one. I'm worried about my husband, who is 34. We are in the process of a bunch of testings by his neurologist. His brain MRI came out clean, his lumbar MRI showed one herniated disc...