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  • SBHarley, you just wrote a Visitor Message to yourself. No one will see it. To make a post, go to the forums. From here, look up to the red 'donate' button--below it, click on the blue link to the 'support group forums'.
    My brother has just been diagnosed with ALS. We are devastated.
    He has been given to understand he will be offered IVIG next month, and I have seen on this forum that many ALS sufferers are having IVIG.
    However google searches suggest IVIG is not a treatment for ALS, but is a treatment for Multifocal Motor Neuropathy.
    See example here: https://www.researchgate.net/post/Why_motor_neuron_disease_MND_is_treated_with_IVIG
    Could anyone explain why IVIG is offered for ALS if not considered a relevant treatment? Or am I mistaken?
    Thank you so much.
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