Recent content by Sayitisntso01

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    Undiagnosed still after 2.5 years: your advice please knowing how tricky ALS can be

    Thank you affected. That was poor use of English. The term “you” was meant as a third part but really referring to me not you. It was clear to me that you thought I had neither primary or secondary symptoms. That was very clear. I was saying I thought I did which was unnerving. I’ve read a few...
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    Undiagnosed still after 2.5 years: your advice please knowing how tricky ALS can be

    Dear Laurie I’m also honoured to receive your reply and time. I’ve held my life hostage because I feel so crappy and saw things I read like twitches,swallow issues, secretions,pain. My life has been hold for years. Thank you for your insight. I saw the pulmologist today who close the file. I...
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    Undiagnosed still after 2.5 years: your advice please knowing how tricky ALS can be

    Thank you beastfriends14. You are very kind. Yes I’ve been extremely worried I’ll admit. I’ve read probably too much that I challenge assertions I guess. Like twitching, muscle wasting, increased secretions, neuropathic pain , incontinence which I’ve read on your site and other are all als...
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    Undiagnosed still after 2.5 years: your advice please knowing how tricky ALS can be

    Sincere thank you for your time affected. Sorry for the thesis. And yes I thought possibly I was experiencing secondary symptoms and not the primary there falling under the radar but I hear your. Problem is Neuros are saying to much on what it could be. Vague. Hence that’s unnerving when you...
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    Undiagnosed still after 2.5 years: your advice please knowing how tricky ALS can be

    Hello everyone, - first, my sincere thanks for taking the time to help me. - I’ve read everything there is to read about ALS over 2.5 years and I have the greatest respect and compassion for pals/cals - I’ve been suffering ALS-like symptoms that are internal for 2.5 years and multiple EMGs...
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