Recent content by Saubier

Actually, I seem to heal faster than before I had ALS. Simple things like cuts and scrapes.

Atropine dries up the mouth. You could make a tea from the bulbs of daffodils. I haven't tried it, so be careful. Don't use bulbs you buy; dig them up.

The herb schisandra stimulates HSP70. So does the drug Arimoclomol.

The cramps respond well to 800 mg/day of Vitamin E. The tocopherol works better than the tocotrienol for cramps, but I take both anyway.

DM is dextromethorphan (cough medicine)

Laurie, I wouldn't take selenium, at least not every day, it's highly toxic. Go to the ALSA website; they recommend B12 sublingual, folic acid, and some other things. I take the B12, E with tocotrienol, D3, folic acid.

First, Ernie, I'm not so sure about the VA hospitals; get yourself to an ALS clinic. Second, everybody, how about a list of GOOD ALS clinics. Johns Hopkins is one.

Actually, I think I have MORE hair than I had before ALS. Maybe has something to do with lower levels of testosterone.

My speech went first, now swallowing is getting more difficult. At the same time, my fingers lost the ability to "pinch," but I still have a strong grip.

Not a simple blood test; CSF is cerebral spinal fluid.

I see you're from Ohio; Case-Western in Cleveland has a wonderful clinic, I hear.

Dear pop3, Get your doctor to prescribe DM and quinidine for your Mom. I have bulbar ALS and I couldn't work without it. It enables PALs to control their emotions better.

Here's a picture of my left hand. See the prominent tendon? Now you can even see the tendons in the palm of my hand, because there's no meat. Couldn't get the picture to post.

I have had hardly any fasciculations, and what I have had haven't bothered me much, but I do have significant atrophy in my hands.

Michelle, I would think your Dad would want you to go on with your lives, doing the best you can. His work may be nearly over, but he should see the fruits of it in you and your brother. Tell your brother to write and send emails, and you visit him when you're feeling positive, and all will...