Recent content by Sarah92

  1. S

    My emg was normal, however since then my symptoms are much worse. Lots more muscle atrophy...

    My emg was normal, however since then my symptoms are much worse. Lots more muscle atrophy, tongue twitching at rest, nasal speech. I am seeing another neurologist soon
  2. S

    Hi sorry did you mean to say how are my feet?

    Hi sorry did you mean to say how are my feet?
  3. S

    Terrified it’s ALS

    I’ve had an mri of my head which was normal and a few blood tests to check for other things have come back normal. I understand I have to wait but I’m noticing changes daily to my strength and muscles. I know they say pain isn’t a symptom but I’ve heard from many that it can cause pain, I have...
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    1CBD0B42-4239-416E-A983-2B277B862508.jpeg

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    CBD96E0A-C11E-4EC6-B0A5-6BC186E33C27.jpeg

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    52B6FC4A-4D80-4801-9F5A-F2735CECA91B.jpeg

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    7591575A-B94D-408B-A5B1-76A2F4FA13AD.jpeg

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    FB326ED1-61C5-4DC4-B57B-C8968184BD5A.jpeg

  9. S

    Terrified it’s ALS

    I have an appointment for emg on the 24th of august, I just don’t know what to do in the meantime if things get worse as I don’t have any support where I am and I have young children x
  10. S

    Terrified it’s ALS

    Hiya I just wanted to update you all on my situation. I’ve seen a neurologist who suspects mnd and is going to do some blood tests and an emg. My symptoms are progressing very quickly, my hands, feet and arms are extremely thin now and my swallowing has become very difficult, I am getting short...
  11. S

    Terrified it’s ALS

    I totally understand and respect that, I mean no harm in coming here. I know you all are educated in this awful disease that’s why I came here to ask some questions. I’m waiting for tests so as you can imagine I’m extremely anxious. I have noticed some tongue atrophy and muscle wastage on my...
  12. S

    Terrified it’s ALS

    Thanks for the reply I really appreciate any help and support on here, it seems a very safe place to be. I’m very anxious waiting for my appointments, over the past few days I’ve had tongue twitches, when at rest also, my speech is getting more difficult and my legs and arms mainly left side...
  13. S

    Terrified it’s ALS

    Thanks for replying, the neurologist is referring me for tests and mri. I already feel my symptoms worsening, my speech is definitely getting worse. Non of my family or friends believe me as they can’t see it, I’m struggling so much to come to terms with a possible diagnosis x
  14. S

    Terrified it’s ALS

    Hiya I’m sarah, 28 and I need somewhere safe to talk about what I’m going through. My symptoms started about 8 weeks ago I came out of hospital for gallbladder issues and within a week I had a headache and felt off balance and then I felt a slight stiffness (best way I can describe it) in the...
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