Recent content by sarah

I was not on this site very often but I have talked to a few people. My husband at the age of 26, lost his battle to ALS on Sept, 27th during the night. We knew it would come, but I didn't think it would happen yet. From the way he was progressing I thought he had a nother year. I guess I was...

my husband has the basic wheel chair, nothing fancy to it. It is not a powered wheel chair. I used a two inch foam custion this last time, that seemed to help a little. It sat him up a little better, which made his legs not stretch out as much. Also, he can not be reclined in any chair. If his...

My husband went to his regular 3 month doctor visit today. He has a hard time sitting up for to long, and we were at the doc's for 1 1/2 hours. We almost left because chris was getting to sore sitting in his wheel chair. My question is, what will happen when he cannot sit in his wheelchair any...

Its just hard doing something that my husband doesnt like. I know I need to make some changes on how I am lifting him, but on the other hand, I don't want him to be mad at me. Cause when he's mad, he's mad about everything. I think I will talk to him about all this tonight. THanks Sarah

Kathy, Thank you for the advice. We do have a hoyer lift, I have tried it, but I need someone else to help. He almost slides out of it, and so I am trying to make sure he doesnt fall out and move it at the same time, that was a bad experience. I guess I could look around and see if there is...

My husband is 26 years old and has had ALS for 4-years now. He cannot move, but maybe a slight movement of his hand or legs and if he is sitting up, he can sway his head from side to side. About the hospital bed! It is getting very difficult for me to pick him up and move him from the couch to...

Great news! Keep us posted.

Shaking in the legs and feet when my husband was diagnosed, one of the first things I started noticed was when he would sit down, or even in the car driving, his legs would shake. Sometimes he would have to pull over and wait a minute for it to stop. If I remember right, his legs was the only...

23 when diagnosed My husband has ALS and is only 26 years old. He was diagnosed when he was 23 years old. It has been a long road in the past few years! Sarah

My husband loves his recliner! My husband also loves his recliner. He only lays on the couch to nap and to release pressure off his neck from his neck brace. He hates to lay down, but sometimes he gets so tired he has too. I too, wish that there were more nurses up to date on ALS. I know more...

3 1/2 years now My husband had symtoms for a couple of months before he was diagnosed in september of 2003. So he has had it for atleast 3 1/2 years now. He cannot move much, maybe just a slight movement with his hand or leg, or if he is sitting up, he can shift his body left or right a little...

dana- I love Dutch Bros. Coffee! I used to get their coffee all the time. Now when I am out and about, All I do is get my shopping done and come back home. It has been a while since I have had a dutch bros. coffee. Sounds good! Are they still collecting $ for the ALS cause? If they are let me...

ross- My husband has als. You said your mom cannot hold her head up, Well, I recommend using a philadelphia cervical collar neck brace. Her doc should be able to write a prescription for it. It has worked wonders for my husband. He can sit up in his recliner a lot longer now. He also, has no...

Cindy- Thank you for the welcome. There is alot of friendly people on this site! It is very hard to find time for myself. I don't get much at all. A hospice nurse comes once a week, but I spend that 3 hours doing my shopping and other things. My free time is when chris and my daughter (amber)...

Dana- I live on the Coast in North Bend Oregon. Yes, It is hard being my husbands caregiver, but If I were in his shoes I would want him to do the same. We have good and bad days, but who doesn't!?! Our daugher is our pride and joy! She is what keeps chris going. She loves to help out with her...