Recent content by sara06

  1. sara06

    My mom was just diagnosed with ALS

    Oh my goodness honey, you and your family are in my prayers! I'm so sorry for your loss, and I hate to sound cliche, but I kind of understand what you are going through. My mom passed in October '06, 10 months after her diagnosis and I feel like it's just now catching up to me. Remember she...
  2. sara06

    More of my crazy ranting!

    Thanks to all of you. Your .02$ really is helping. One of the reasons I decided not to find out if I have the gene is because I am only 23 and I do want more children. If I did indeed know that I had that gene, I'd have a hard time having more kids, always wondering if I passed that gene on...
  3. sara06

    More of my crazy ranting!

    Thanks for that Grampal. I wouldn't consider an abortion for any reason. My issue lies with wanting to have children. Am I selfish for wanting to have them regardless of ALS?
  4. sara06

    More of my crazy ranting!

    I was watching television the other day, I believe it was Primetime, Medical Mysteries. They were airing a segment about Ectrodactyly, "lobster claw syndrome" There was a woman on the show named Bree Walker who has it. She used to be a news anchor and is now an actress. Unfortunately this...
  5. sara06

    Sisters with ALS

    my family has FALS Steve, You should read some of my other posts on this topic. Back in 1973 when my grandfather was diagnosed, he and my grandmother asked the doctor's what the chances of their children being affected by this disease were. They were told there was no chance, that it was an...
  6. sara06

    Concerns about breathing....

    My mom passed away in October of 2006, 10 months after her diagnosis. She too did not want a feeding tube or ventilator. She did use a c-pap machine with the nose pillows for about 6 months. That really helped her to feel more rested. She was hospitalized a week before she passed. Her...
  7. sara06

    Do ever wonder why us

    not a whole lot of sense, just late nite rambling Death, who, how, when and why it happens is one of those things we will never, as humans, fully accept and understand. I grew up knowing that my grandfather, my great uncle, and my uncle all died from ALS. Call it ignorance, but I never...
  8. sara06

    My Dad...

    JMH, I noticed that you posted this a while ago. I hope you are still checking on it. My mother had a terrible gag reflex. It was hard for her to do because her hands and arms were so weak, but she found the suction catheter a lot more tolerable if she managed it herself. If we could get...
  9. sara06

    Mom newly diagn. today

    Hello Diane, Tell your mother I said HAPPY BELATED BIRTHDAY! My mom was diagnosed 12-14-05 when she was 47 and passed 10-28-06 at 48. I don't know if you've read any of my other posts, but ALS is hereditary in my family. My grandpa, uncle, great uncle and mother passed from it and 2 of my...
  10. sara06

    Medicare AHHHHH!

    Thank you for your input Paula. When I spoke to the man on the phone I told him my mother had already passed, and he said he would send me the appeal forms... but I think it's a mute point by now. I did get in touch with our lawyer friend, he said it's not a cut and dry, yes or no to whether...
  11. sara06

    Hand Atrophy Pictures

    Hi Al! Thanks for sharing those pictures. You are such a bright star to have on this site. My mama's hands were like that and nobody suggested a splint, she actually told my brother that if her fingers were curled when she passed away he better break them or make sure that someone did. She...
  12. sara06

    just found out

    Anon, I'm so sorry to hear about your dad. It's really not fair, but everything happens for a reason. My boyfriend and I have been together for 5 years, we have a 3 year old daughter, I lived with my parents and he lived with his. When my mother was diagnosed in December of last year, we...
  13. sara06

    Medicare AHHHHH!

    Well thank you for your suggestions. After reading some of your replies, I'm wondering if some of you realize that my mother is already gone? Also have any of you heard about this law stating that spouses are not responsible for unpaid medical bills? Hospice was in the home for only 4 days...
  14. sara06

    Medicare AHHHHH!

    Okay guys... I need some serious help. First off, when my mom and I were trying to figure out all of her doctor bills and we were on the phone setting up payment plans, a lady at one of the offices told my mother to pay only what she could afford because when she died my dad would not be...
  15. sara06

    Mom newly diagn. today

    Diane, Honey I am so sorry to hear about your mom's diagnosed. She's lucky to have you. I remember the day my mom was diagnosed like it was yesterday. It hasn't even been a year yet. She just passed in October. Let me tell you, you have a great attitude. Staying positive can do so much...
Back
Top