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  • Good Morning, I think. I'm new here.Not one to blog or chat much. never have time. My husband was diagnosed with ALS in Nov. 2009. I have been his primary caregiver in the last year during his rapid decline. Two of our children are adults and off in college. Its just me and our 15 year old son at home.8 weeks ago my spouse was admitted into a Hospice Respite/Extended Care Residence.He hates it. He wants to come home. This idea frightens me to the point of panic attacks. He is at a plateau, no significant changes but still declining.I feel he should be in a nursing home. When he was home earlier this year and even the year before; the stress level became unbearable. I am physically challenged when caring for him. Its difficult to roll him, change him etc. My son and him will only end up in constant quarrels. I don't know what to do. I feel so lost. My husband keeps sending me text that he wants to go home, he wants to know when i am bringing home and why am I denying his request.
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