Recent content by Sandy14

I thought I'd share this with you all: https://www.statnews.com/2022/02/23/scientists-take-key-step-toward-unraveling-the-genetic-roots-of-als-in-a-pair-of-studies/

I was diagnosed with ALS roughly 18 months ago and so far it has effected only my speech and swallowing (and a bit with my breathing). I have been using a cough assist device for about 6 months now and it helps a lot getting the mucus up and out. I also use a bi-pap machine at night which also...

HAPPY THANKSGIVING TO YOU ALL! I have the chance to start Verdiperstat but I wanted to reach out to all of you to check if anyone has been taking it, whether you've noticed any improvements, or if there have been any nasty side effects? Thank you so much for you help!

I met someone who suggested I check out Clene as they are in the process of developing this very exciting drug called CNM-Au8 which is part of the Healy platform.Clene’s lead drug candidate, CNM-Au8, a catalytically active gold nanotherapeutic, is the result of a patented manufacturing...

Hi Laurie, Do you know if I'd have to go off any of my meds or supplements in order to be in the trial? Thanks, Sandy

I started on Clenbuterol around 3 weeks ago and, yes, I ordered it through social medwork. I needed a prescription which I got from Dr Bedlack.

Poor Old Nincumpoop totally owns only nothing KAYAK

Thanks for the feedback.

I am considering seeing Dr Jay Lombard (along with the conventional neurologists that I'm already seeing) but was wondering if anyone has any experience with him?

This just came out yesterday, so I'm assuming it hasn't been posted already. I read this and was very excited! ALS neuron damage reversed with new compound

Wow, this sounds amazingly promising! If I could get into the trial, I could also fulfill my life's dream of playing golf in Scotland?

Thanks Pipis. I am so excited to hear about your amazing progress! I too have been taking turmeric and do lots of stretching. I also take a wide range of other supplements, including vitamin c w/ lipoid acid and glutathione. One of the things that helps me more than anything else is...

Hi Susie, I am so sorry that I am just now seeing your response to my post. If you look back to page 1, I have already included the articles about NAD+. FWIW, I have had my full loading dose (4-6 consecutive days of an IV) and am going back tomorrow for my maintenance dose. I did start...

Wow, you are so knowledgeable, Kim! Thanks for your responses. FWIW, I only eat grass-fed beef, but I feel like there's really no major downside to avoiding red meat for at least a month and watching what happens. The eating red meat with Vitamin C also makes a lot of sense since C is known...

Exactly, Kim. Bone broth helped my gut too. We also call the manufacturers any time we see "natural flavors" or "spices" in the ingredients for a food product I want to consume. And, definitely, it certainly can't hurt to stay away from processed foods. What's really bothering me though is 2...