Recent content by sand

Good morning Matthew, Sorry to hear she hasn't had any improvement so far. How long has she been on Lithium and who put her on it? I am hoping to hear from people who stabilized after taking it. I will be trying it after our long awaited vacation. Sand

Hi Brenda, I just got back from my primary doctor and he wouldn't prescribe lithium since it hasn't been approved for treating PLS or AlS by the FDA. I am going to order it online. Did your doctor order the carbonate or orotate form and how many mg.'s. He did do a blood test to check my...

Hi sral, I think it was only the drug my neuro knew to prescribe for me in hopes that it helps. I started with a herniated disc, surgery and I was still left with a weak left leg. All starting in 2003. My left arm and hand got weak in 2007. I just saw my primary doctor today in hopes that he...

Brenda, It seems your boys keep you busy and that is good. Glad to hear your oldest is doing so good in pole vaulting. I have had a bad weekend because I feel so worn out. I went to church this morning and that makes me feel good and bad at the same time. People ask me how I am doing and say...

Hi Brenda, I just finished a reply to you and it ALL WENT AWAY. My fingers hit the wrong keys all the time. So here I go again. PLS is primary lateral sclerosis. My weakness is due to upper motor neuron dysfunction. This form of ALS is less aggressive. My second neuro said after my second EMG...

Hi Brenda, You must be a very strong person to deal with your problem so recently diagnosed. Are they sure you have ALS? Did they diagnosed PLS first and how long have you had symptoms? I know I could walk better if my foot wasn't so red and not feel so heavy. I really get tired of feeeling...

Brenda, Thanks for the info. I am hoping my GP goes along with the lithium treatment. I don't remember if you have ALS or PLS. How do you work all day and then keep up with a 7 yr. old? I had to stop working in registration at the hospital Oct. 2007 because I got too tired walking to my job...

Olly, I sure do pray that it lets my right side alone for a couple of years, although I am not enjoying myself right now either. Life is so much harder right now, I find it hard just to try to start the day. I get tired from just getting dressed. I will try to sort out my meds on Monday...

Hi Geo, Wow you are in FL and that is where my husband is working right now ( near Tampa ). I am very bitter, I wish I could be there with him on weekends, but it is too hard for me to travel and I am still seeing doctors and I will be checking out all my meds on Monday, especially Rilutek that...

Whitsend, Just read some things about you and your case seems so similiar to mind except my right side does not seem to be affected yet. Not looking forward to that though. I bought a rollator walker today. My cane was just making me to tired to get around the house and I couldn't carry...

Brenda, How much Litium are you taking? Sand

Hi, Today I discovered that there is a page 2. I will get used to this site soon! I have stiffness in my leg and knee joint and mild spasms when trying to stand after getting out of bed. Had all sorts of tests including lots of EMG's and MRI's because I drag my left leg and it gets real...

Good Morning Olly, I agree about being on less meds would be better, but I just went along with what so many different doctors prescribed and they all knew what I was taking before I saw them. I will be checking on why rilutek was prescribed the day I was diagnosed with PLS. I never heard of...

Hi Shane, I do take Co Q-10 and B-12 along with a lot of other vitamins. My attitude right now is that I am mad at the world. It seems after finally being diagnosed no one really knows what drugs I should be on. Example- I just read Hydrocodone should not be taken if one is on Neurontin, I am...

Sorry Geo, I am still trying to learn how this site works. After my PLS diagnosis on Mat 28th the neurologist put me on Rilutek and I didn't know anything about the drug, but was very anxious to try anything. I just finished reading about it and I will be checking it out more with my primary...