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  • So sorry to hear about your sister's diagnosis Sampit, I know how overwhelming it must be. My husband had ALS af 4 but his was very unusual in that he started with respiritory failure and was trached and vented at the beginning. He didn't have pain to speak of or a lot of difficulty with emotions. We didn't try any of the alternative treatments so I can't answer that question for you. Regarding diet, the conventional wisdom is to prevent weight loss as some PALS seem to have hyper metabolism with ALS. Some doctors recommend eating 130% of normal calorie recommendations. I think you may have read posts by Kim re mineral tests and pain as I haven't posted on these subjects, you may want to contact her. What a wonderful sister you are. Kate
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