Recent content by samnikolep

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    We are stuck and need advice

    First off does this really matter? Second off we as a couple use this site. Seeing as we are a team I posted the 1st 2 and reed the one with the diagnosis of ALS posted this thread. Thanks so much for the help. Unfortunately we got the diagnosis last december and we are trying to reach out for...
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    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
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    Genetic testing??

    My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...
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    Symptom question???

    Yes we have told both als specialists that we have seen and they both said it has to be als due to nothing else showing up. They dont seem to care about his other symptoms at all. Just wondering where to go next went to the mayo clinic and to a local als specialist the local specialist did and...
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    Symptom question???

    So sorry that I didn't explain well he has been diagnosed with ALS was wondering if these other symptoms with muscle weakness fasiculation hyperreflexia babinski reflex. Abnormal emg. . . Just wondering if these other symptoms were normal with ALS or if I should get him in to another doctor or...
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    Symptom question???

    Ok so I guess this is where we are at. He is 28 years old in February 18' he had severe back pain that went down his left leg. Then in may we noticed twitches in his biceps and triceps and his pain went away at this point I noticed he was walking differently not quite limping but just an odd...
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