Recent content by sam3030

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    Need some honest advice

    thank you for both Ur replies . Lori I think U are spot on with chasing an answer may not be be the right path . I admit to having anxiety and so far I've gotten through it in life by getting fairly clear cut answers. for example you can getting a pretty difinitive tests to rule our cancer or...
  2. S

    Need some honest advice

    sorry to bring this up again. I'm still having issues . and I've still got zero answers . all my tests keep coming up negative ! I'm now twitchjng 24/7 mainly in my calfs . I have constantly got this feeling of ants crawling all over my lower legs now . I'd I look at them I can see lots of...
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    Need some honest advice

    thank you ! yeah I think his suggestion of another test was following on from a concerned look on my face I think . when I mentioned I was having fatigue talking and my face feels tired all the time , he was chasing myathina gravas. he also added CK to the other 2 tests for 2 immune tests for...
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    Need some honest advice

    sorry to come back to this . a quick question... with my symptoms still ongoing and the doctors stroll trying to track down a cause I did a CK test . it's came out at 160 U/l . I think the reference range is 30 to 240 or so . The doc mentioned it's in normal range however a little on the high...
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    I have been told a clean emg in the lower body eliminates als as a cause if ur symtoms. Further...

    I have been told a clean emg in the lower body eliminates als as a cause if ur symtoms. Further to this bulbar onset is rare in a disease which initself is rare . This along with a clean emg one would have to be pretty darn unlucky to have als. I have tinnitis in my ear as well so im also...
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    I also had a clean emg done on every limb ! I couldnt belive it came out squeeqy clean. Not sure...

    I also had a clean emg done on every limb ! I couldnt belive it came out squeeqy clean. Not sure where to go from here either for myself. I have seen 3 neurologists all who tell me its in my head !
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    I read ur post about als concerns and jaw issues. I have the same problem . Body wide twitching...

    I read ur post about als concerns and jaw issues. I have the same problem . Body wide twitching and i cant talk or eat anymore . My jaw just feels so fatigued ! And so does my tongue . Infact i have weakness im half my body pretty much .
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    Hello

    Hello
  9. S

    Need some honest advice

    Thank you to both of you for taking the time to reply. At this point im going yo try the medication the docs described and try and switch off from the forums and anything google related for a couple of weeks . Hopefully things calm down a bit. My brain hurts from all the stress and endless...
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    Need some honest advice

    So i came back from my neurologist . Tests for heavy metal came back negative . Mri of spine came back normal. I have attached his report plus my emg results . I have a couple of questioms as this particular neurologist doesnt reallt specialise in meuromuscular issues althought i was fairly...
  11. S

    Need some honest advice

    thank you . I just spoke to the MRI place . They used a solution called GADOVIST which is some kind of gadolinium solution . it's a long shot but I'll see if my gp is willing to test for it . thanks again
  12. S

    Need some honest advice

    sorry to bug you guys again.... so moving on I still have these weird symptoms described above and am trying to figure out how to resolve them . all my tests are coming back normal so I'm not too concerned it's als anymore . I've been thinking back trying to figure out when they started .... I'm...
  13. S

    Need some honest advice

    just got back from my NCS and emg . all clean from what the operator told me . he did my entire right side including my hands and said no abnormality found for both the emg and NCS. I got him to also do my lower extremities of the other side just for my reassurance .... also clean . I'm even...
  14. S

    Need some honest advice

    apologies if I stepped over any lines with both yourself and igelb. I'm doing my best to keep it together till I have this emg on sat. thank you for the private message btw . There was some good resources there. I'll come back and end this thread with the emg results whatever they may end up...
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    Need some honest advice

    thank you for the wise words . ill try and keep my mind occupied during the day and I usually can . I think for me nights is the worst . when things happen during the day U can think about it and put some perspective on it . nights is a different story . I'm up at the moment 4 am now and my...
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