sadiemae

Hi Lori,
We are excited that my dad will be coming home for a brief visit next weekend over Labor day. My brother has a class reunion so he's driving dad home for a few days. Kind of nervous too about seeing dad since I know he's alot weaker then the last time I saw him. I was wondering if you or anyone of here have heard how Ted is doing? He hasn't been on for quite sometime. Kim

Hi Lori. I apologize for taking so long to respond to your kind message. The summer got busy, and quite honestly, I've been avoiding the forum for a while. There is so much support and helpful information here and I'm sure there will come a time when my brother's illness progresses to the point where I want to spend more time here, but it's not there yet, fortunately.
I am so sorry to hear about your husband. How is he doing? To answer your questions, no, he isn't a veteran, and yes, he's still working.
Thank you again for reaching out.

Read your post. Hugs, hon. Does he have FTD? You poor dear. I wish I could offer something that would help

What is this OSC that Les is trying out? How does it work? My dad is using a bi-pap type thing just at night now. He still eats well enough that he doesn't have a feeding tube. He refuses to ever get one. My mom had one for a short while and was miserable with it. She had her dr. remove it and survived for two and 1/2 years without one. Dad is extremely thin but he hasn't lost any weight in the last few months and has a great appetite. Hope you have a good week. Kim

Got the all clean, thank you again for reaching out and constantly helping others. You really are someone special. Thanks again

Thanks for the msg. I go in tomorrow more my EMG. Its at 6am (early) but at least I won't have to worry all day. I'll let you know how it goes. Talk to you soon.

Hello Sadiemae,
It is great to hear from you. I am very sorry to day that I am more convinced than ever that I have ALS. With significant contraction fascics in my thighs along with wasting as well as lip twitching, loss of tongue mobility and loss of muscle mass across my body, I believe it is only a matter of time until I get diagnosed. I am losing dexterity in my hands and my thenar and 1DI are wasting away in my dominant hand. I know you will think that this is just my anxiety, but I am being real and these symptoms are clearly signs of ALS. I know...clean emg...but for many reasons I question the validity of the test. I truly wish I could be comforted by your positive belief that I don't have ALS.

Got it...thanks. Poor dear is in for a long hard ride.

k.

Just cleaning up my page!!!

Sorry about your Giants, Lori. Regardless, they're more than likely going to win their division. All will be fine.

I posted a apology to CJ. I didn't mean my post to sound the way it did. I will keep my comments to myself from now on unless asked. I didn't mean to sound like I was bashing her. When after reading my post sounded like I was. I just worry about her emotional state dwelling on this horrible disease. I'm truly sorry if I offended any of you.

Hi! My dad is a veteran and my sister is checking to see what they all cover for him. Do you have any suggestion on what we should ask them? My dad is planning on participating in some clinical trials. He told his doctor that he would participate in any experiments or testing especially if it will help others in the future find a cure. He is probally going to give Ritulek a shot as well.

I'm sorry for you, Sadiemae, and hope your husband is doing okay at the moment. I do realize anyone can come and read the public forums - including my brother, who recently posted here. And I don't want anything I post to upset him. I probably won't post that much for that reason.
I would appreciate any links you think might be useful.
Thanks.

Lori,
When you get a chance check out lalebot in dihals. Before I respond negatively, I wanted someone elses opinion on her wording. Is she mocking us?
Kimberly

Lori,
Are you up or is your phone on?
Kimberly