Recent content by rutra80

  1. R

    Hopefully BFS, but my grandfather died on ALS

    You mean that your 5 relatives have ALS? I have a son and me and my wife would like to have another baby, but we are waiting until things clear up, to avoid spreading of this curse. I have many relatives who could also inherit it, they're all fine so far. Unfortunately my grandfather was an...
  2. R

    Hopefully BFS, but my grandfather died on ALS

    Is it possible to edit posts? I'm 33 BTW.
  3. R

    Hopefully BFS, but my grandfather died on ALS

    Hello, since over a year I have fasciculations which happen just about anywhere on my body. I did have a quick EMG (2 nerves and 2 muscles tested) and it was clean (but really I do fasciculate, my wife saw some visible ones). I visited several neuros and as for now there are no obvious...
  4. R

    What is the most promising researcher? I want to donate.

    Hello, I want to donate some money for MND/ALS cure research. Could you please name some most promising entities?
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