Recent content by rusty_pecker_head

I have posted on here a while ago concerning my some issues I was dealing with. Since that date I changed a lot of things about my life and how to understand me and my path forward........ A little background here about me and my past post....... I have been living with the nightmare of FALS for...

Some days I feel great...... Some days I feel beat down. I had a good workout today but now right leg is twitching like mad! I am on the verge of getting a cramp. How long do people have sympoms of ALS and not know its ALS? I am sure everyone who has been diagnosed can go back and think about...

Someone asked me how old I was last week and I told them in 36 years I will be 72.......... I got the look from them I wanted, it was funny

Well I went to the Nuero a couple weeks ago. We did the strength tests and he wacked me with his mini rubber mallet for what seems like 2 hours. All the test were pretty good. My left hand was not as strong as my right but I am right handed and it's not all that uncommon. While he was doing the...

Yes my Dad had ALS and so did his father. ALS also started in my fathers arm.

Well, I have my appointment with the Nuero this week. All my initail blood test the GP ordered came back normal. I am praying I have a pinched nerve in my neck. I will tune in and write in here again if it's anything worth sharing. Thanks for reading

I have a family tree documenting ALS going back 5 generations. 25 of my family members have passed with ALS. I was going to get the genic testing done but with out my fathers DNA to look for the sod1 gene there couldn't be a 100 % confirmation I didn't have the disease. If something has changed...

Great deal? i don't know much about the VA, I guess I need to put more effort in that area. ?Thank you

Just one step at a time for now. All the tests are coming. I will use the VA at some point if it seems like my medical provider is not doing all they can for me. This is all new to me, thanks for any advice anyone offers to me. The bloodwork will taken on Wensday I don't expect any results until...

Well I went into the doctor. I showed her my arm and we did a series of reaction test. It was pretty much what I expected and I now have an appointment with a Nuero in a few weeks. She wasn't an ALS specailist and I think I may have been the first person in her career that she has seen with ALS...

I am a veteran, thanks for reminder

Thanks for reading my post. I will try and keep this thread open and update with any news. My family and I are very driven to be informed so I can share anything I learn. Like wise please post anything that may be helpful or informative from any readers. I have not been to the doctor yet. My...

First appointment coming up this week. I guess I am a little scared.

Well, I made a post about FALS some months back. The thread was closed otherwise I would have posted on it. I haven't been back to this site since then. The crawling in my arm is still there and now I feel my left hand becoming weak. It was time to tell my family about the news. Things are...

Thanks for reading my post....... I am a very happy person and possitive throught out this tramatic reality. I spent years in depression and pushed alot of loved family and friends away with my negative thoughts early in my life. I woke up some time in my twentys after a long greiving process. I...