Recent content by rulimping

Hi my3sunz42 Sorry to hear of your Dad's symptoms. We believe I have had MMN for about 10 years now, altho only diagnosed about 4 years ago, and I have never experienced shortness of breath or fainting.My understanding is MMN symptoms start distally (hands & feet) and slowly moves proximally...

Hi Melb, I was diagnosed with MMN with conduction block in late 2010 and have been on IVIG monthly-3 weekly since - altho I only have a moderate response I understand that if stopped the treatment I am likely to experience further impairment. Since starting IVIG I have no significant...

Hi there, I have been on IVIG monthly for 8 months and respond to some extent but no detectable improvement in conduction block. I am moving to 3 weekly IVIG. My neuro has suggested if this pattern continues that we try a low dose immunosuppressant - ie the type that is used in organ...

Hi Peg, I have now been on IVIG monthly for about 9 months. I get a response with strength but no change to conduction block that I can detect. I am therefore moving to 3 weekly IVIG and we will monitor for about 3-4 months. If still no improvement the plan is for me to go on a low dose of...

I don't get any side/back/chest pain. I have pain in my affected leg when walking, which worsens the more I walk (I think that is muscles fatiguing). I get some pain / numbness in my foot. I have pain in my wrist from wrist drop. I get the fasicns throughout, but no RLS. When I wake in the...

Hi Finallymmn, I'm also just diagnosed and had IVIG "induction" last week. I think I get more muscle fatigue, because muscular weakness / atrophy has started to kick in.... but I also exercise less, as a nerve driving my calf muscle is affected, which makes me limp slightly, so that is...

Thanks Peg, that helps. I have also noticed that I am fatiguing faster with exercise - and that's just 5km on the exercise bike. I find swimming really good - I have one very dodgy hand (radial nerve), but I'm not swimming in circles yet! I'll keep up the exercise tho', otherwise I imagine...

As newly diagnosed with MMN, and having been fit & healthy to date, I would like to understand more about my immune system & what I can do about it, if at all. I'm interested in other people's learnings from your condition and treatment - altho' I get it's very individual, eg: stress & work...

Hi Chels, I've just been diagnosed with MMN, after an inconclusive investigation with another neuro about 1.5 yrs ago (and he advised me it was stress ...:evil:) It's a very stressful time and sounds like it's been a tough road for you so far. I'm also a youngish Mum; never been ill, so this...

Thank you, Cherie, that's really helpful. I am heartened to hear of people working & living relatively normal lives. I expect that we will need to always closely monitor treatment. However I hope that if I respond well to treatment and we can stabilise me that we can investigate subcutaneous...

Hi Doris, I note you are also Australian with MMN. I had EMG last week and was advised likely MMN; expecting formal confirmation this week. What a roller coaster... I am in Melbourne and interested in whether you are a public or private patient and of the out of pocket costs. I'm also...

Hi Jooo, I note you are also Australian with MMN. I had EMG last week and was advised likely MMN; expecting formal confirmation this week. What a roller coaster... I am in Melbourne and interested in whether you are a public or private patient and of the out of pocket costs. I'm also...

Hi Timmi, I note you are also Australian with MMN. I had EMG last week and was advised likely MMN; expecting formal confirmation this week. What a roller coaster... I am in Melbourne and interested in whether you are a public or private patient and of the out of pocket costs. I'm also...

Hi Cherie, I hope you are travelling OK with your treatment and condition. I had EMG last week and was advised likely MMN; expecting formal confirmation this week. What a roller coaster... I am in Melbourne and interested in whether you are a public or private patient and of the out of...