Recent content by ross

  1. R

    Now what?

    VERY NICE! We don't get, well, I must say good news very often. good luck Matthew
  2. R

    Keeping track of who is from where

    Ft Thomas, Kentucky, USA
  3. R

    ALS Son Very Angry!

    I would definately look into antidepressants they will probably need to try different ones to find which works best for him. my Mom was not to happy I was on this site at first but she soon understood it was as much for me as it was for her if you discuss whats talked about on here openly its...
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    Coping Techniques

    sleep issues My mom had the same trouble for a long time untill we got her one of those air matresses for bed sore control and she said she didnt have the need to turn as much at night sleeping on that .it helped her sleep thru the night for a long time
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    15 Years with PLS Mom Passed Away

    15 yrs with PLS Mom passed away Saturday morning May 19 Mom passed away she left us quietly and we believe painlessly she had strugled the last year and I was proud to be her caretaker she was a proud woman and a Lady to the end. We all learned a lot and had many donations made in her name at...
  6. R

    Im new say hello

    Hi Anthony I can tell ya from experience the speach assist does not work well when the voice she has is changing they are very expensive also my Mom has been dealing with speach problems for a long time the best idea I have had and it works well I did it for my mom who is bed ridden now and...
  7. R

    care giving question

    Thanks Al your always full of great information I know this is a good place for support I am just not a typer and I think I have a lot to talk/vent about I tend to rethink my thoughts too much when I type and I believe less thought is better
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    care giving question

    I am in the Cincinnati area and have had very little help over the years not from the lack of searching either. I have found we are so progressed its hard to find peps that know more than us on how to help, we have had braces made, custom wheelchairs, and a lot of home ingenuity, home...
  9. R

    care giving question

    I take care of my mom who has very progressed PLS in fact I believe it may have progressed to ALS since I have noticed slight breathing trouble she seems to be giving up on some of my ideas to help her comfort .She has very little muscle ability using the remote for the tv has become almost...
  10. R

    great place to learn more

    it cam to me Last night whileI was in bed it cam to me it was just one of those mind blocks I guess but thanks
  11. R

    great place to learn more

    thanks Liz thank you for your comments that feels good to hear, I do all I can while raising 3 kids and running mine and Dads business, and Yea, I like to think Mom and Dad did a GREAT job with us . I just got home from the hospital and maybe because its late but I cant figure out OT , we have...
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    great place to learn more

    bad news Mom took a fall and is in hospital since tuesday she has several cuts on her head required stiches and a dislocated shoulder luckily it was the one she cant use anyway ,if thats lucky i guess at least it wasnt the one she can use a little bit ,since they have her in the hospital they...
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    Undiagnosed Bulbar Symptoms

    speaking device's My mom has a very hard time talking and I have been concidering getting her one of thoseprogramable devices that all you do is push a button and it speaks the programed sentance or work has anyone tried one of these and how well do they work ? mom has PLS very progressed and...
  14. R

    Head support braces IDEAS!?

    I have been dealing with brace shops trying to get a brace that works we have had 2 "TWO" different braces custom made. The last one was $1980.00 and if the guy would have listened to any of my idea/sugestions it might have worked we were in his office 4 hrs yesterday while he fitted her and...
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    great place to learn more

    Thanks Al Hi Al I knew I would hear from you our super moderator ,gotta love that title, you do a great job welcoming new folks as well as sharing your knowlege
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