Recent content by RooRoo

Thank you!

I have read that pineapple juice is supposed to thin mucus. Do you have to drink it or can you put in tube?

I had trouble with the formulas. Most are pure chemicals and sugar anyway. However, I never have had any trouble with real food blenderized in a Vitamix, nor has my tube ever become clogged. I can "eat" all kinds of stuff that is good for me that I wouldn't otherwise eat by mouth. I love it! I...

I was diagnosed with PLS initially, but I could be moving into ALS. I've had symptoms since 2009. But I can hardly walk or use my hands now.

I use Assistive Express App. I like it Ok for the most part. It doesn't always pronounce words right so you sometimes have to be inventive with your spelling!

It took me a year to build up a tolerance to Baclofen. I have a problem with medications. I started with 1/4 pill, titrated to a half pill and about 4 months ago to a full pill at night only. I wondered if it was doing any good. We went out of town last weekend and I forgot my pills (dumb, I...

Jim, do you go to clinic with Dr. Glass? If not, why not?

I love seeing the dogs. They all make me smile!

My husband bought a business in Atlanta and we're moving there. Has anyone had any experience with the Atlanta ALS Clinic or know of any organizations that can provide support? This will be a very hard move for me and I know no one there!

I Am getting SSDI. I am Not taking Rizuole and No I would not take it. I am going to CMC neurological clinic in Charlotte, NC. I already have a Bipap (that's a whole different thread!) I have a PEG tube.

Last clinic I was told I now show signs of Lower Motor Neuron involvement. I asked if this now means I have ALS? The response was" the only way to tell is to have an EMG and it wouldn't change treatment anyway". So my question is...should I get a diagnosis in writing or should I just let it be...

I've had mine since February. The bumper gouges my skin. I'm only comfortable when lying flat.

My tummy is raw from the bumper on my feeding tube...any suggestions? I already use a gauze bandage but that doesn't seem to help. I also have a lot of skin granulation it is very painful! Help!

Sorry I meant whf?

What is whi?