Recent content by ronwv

  1. R

    AAC devices

    Ive seen the threads( although I didnt see 5) . Ive also searched on "AAC devices", "communication devices". Im hoping to get more specific than what Ive seen. I just thought that there would be some opinions on one device vs. another, pros and cons of specific devices, etc.
  2. R

    AAC devices

    Mom is ready to get a comm. device and the speech/audiologist had a PRC Eco device to try. The Dynavox was talked about, but one wasn t avail to try. Any input on pros/cons of any of these (or others) would be great. Word Power was mentioned as the best software. What say the PALS? :smile:
  3. R

    My Mom

    Sorry to about your mom. My mother is going similarly. Can still speak, but its gotten worse recently. Im sure shes glad you're there for her. Ron
  4. R

    night spasms

    i read that it would take gallons of tonic water to get a therapeutic effect. Im sure its better than nothing. My moms neuro. is supposed to be the most familiar with ALS in the area. Is there a list of ALS docs avail.?
  5. R

    ALS Clinic

    1st visit in a couple of weeks for my mom. Dx about 6 wks ago. Anything in particular to ask/do? no ALSA in this area, so this and the MDA is all avail.
  6. R

    night spasms

    well, Doc says he doesnt like Quinine. Wrote a script for baclofen but really didnt want too. The reasoning is its a muscle relaxer and doesnt want anything to weaken muscles even more. He dismissed quinine right away. My mom is trying magnesium supplements for now. Maybe its not bad enough yet...
  7. R

    Mums Dying

    im so sorry you have to experience this. Best wishes and your mom is quite an inspiring woman.
  8. R

    night spasms

    Thanks all. I'll pass this along. This is a great help for one of her most pressing issues right now.
  9. R

    night spasms

    my mom says that every night, after about 2-3 hrs sleep, her arms(forearms) tense and draw up toward her chest. Then her legs will start. She has to force them back down to ends the spasms, then can hardly sleep he rest of the night. Any experience with a similar situation? any ideas on what may...
  10. R

    Dad passed away today

    My thoughts are with you. May peace be with your family.
  11. R

    Mom diagnosed today

    She pays for Medicare now. I guess she gets a regular social security check too, although small. Is this different from what you mention? Is SSI in lieu of reg. SS or something different? Im sure this is going to be quite a change. I just hope she stays strong emotionally.
  12. R

    Mom diagnosed today

    Thanks not sure what to do first. Im visiting tomorrow to do some work on their house. I have a little bit of literature. She likes to read so Im looking at getting some books. I dont want to overwhelm with ALS stuff, but Im sure she would like some solid info. They have no net access (typical...
  13. R

    Mom diagnosed today

    Actually, 2nd opinion. Seems to be textbook accord to the Doc. Also alluded that it was moving rather quickly. I dont want to get down yet though. Just trying to keep it together now. Seeing parents this sad and scared is just horrible. Ive looked around here some, seems like some awesome...
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