Recent content by ronrfc

Thanks Gerry, I research everyting before I take it. The problem with ALS, apart from there being 17 identified forms of it, is every case is pretty well unique. The reaction to drugs for ALS is also pretty uinique, including Balcofen. The purpose, I think, for forums like this one is for...

Hi margeo55 :roll: I am on 2 tabs a day, I find it makes me drowsey too. They gave me for the jaw chatter.Don't know if is working or not yet only been on it a week or so. How lomg did it take before you noticed anything. Ron

Here is an some promising research from Finland and Florida, follow the link http://www.brainlab.fi/14-11-05teksti.htm Ron

Well John I keep looking for hope, so here is another link I think is worth looking at. http://www.alsmndalliance.org/cgi-bin/newspro/viewnews.cgi?id=1124115079 Ron

Here is a more recent on. http://www.als.net/forum/topic.asp?TOPIC_ID=288 Ron

I foud this interesting article, here is the link Ron http://www.medicalnewstoday.com/index.php?newsid=8791&nfid=rssfeeds

Is anyone else using Baclofen. My neuro put me on 2 tabs a day for my chin clonus.(wobbles). I have been on it about a week, so far less chin clonus but it makes me feel tired for a while after I take it. Ron

Where there is hope Ron FDA approves first brain stem cell transplant Friday, October 21, 2005; Posted: 9:33 a.m. EDT (13:33 GMT) HEALTH LIBRARY Food and Drug Administration (FDA) Health Organizations Medical Research or Create Your Own Manage Alerts | What Is This? SAN...

Can you list what you are on. I tried NAC but found I was not tolerating it very well. I now take on a regularr basis. Rilutk - Neuro's prescription Gabapentin - Neuro's prescription Citalopram - Doctors prescription Purple K Creatine - Kre-Alkalyn Coenzyme Q10 L-Threonine Acetyl L- Carnitine...

WHAT IS IT? NAC is N-Acetyl-Cysteine, the acetylated version of the sulfur amino acid, l-Cysteine. Most capsules contain 600 mg of N-Acetyl-Cysteine. Other ingredients are rice flour, gelatin and water. WHAT DOES IT DO? NAC is a very potent antioxidant, chelating agent, and the precursor of...

A new hope on stem cell research Johns Hopkins researchers have found that transplants of mouse stem cells taken from the adult brain's olfactory bulb can delay symptoms and death in a mouse model of amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease. They are scheduled to present...

Les and Granny. I am still able to eat most things and I go out for supper and lunch with my wife, son and his girl friend. I was only diagnosed in August 2005 so maybe I have all this to look forward to. As for neck problems again this is maybe something for down the road. It is good to at last...

I think a large part of the problem with having Bulbar ALS, at least one of the problems I have had is adjusting to the lack of voice. It is after all one of the basic human communication mediums and loosing it is a real confidence denter. Ron

I have been trying out Kre-Aikalyn for about two months. It is a different form of creatine, here are some of the differences between the two. 1) Kre-Alkalyn is the only creatine that does not convert to toxic creatinine before reaching your muscle. Regular creatine degrades by 90%...

Les and Granny do you have as I have Bulbar ALS. Ron