Recent content by Ronnie& sissy

Thank you all so much! Services were very hard, but very beautiful! Over 600 people came to say bye to my hunny, he would of been very pleased and very grateful. To you all as well, continued prayers for you all. And thank you again! Love and hugs.

So sad to tell you all my hunny is finally at peace..... He got his wings at 2:00 this morning, Jan21 , 2015. Thank you all for your love and support. He passed on his own terms, we didn't have to start heavy meds, just passed peacefully in his sleep... I love you all, and will check in when I can.

AMEN! Jake, your words are echoing in my head..... and I thank you for sharing. I too beleive that God puts people in pur lives for a reason, and he sends his angels to look after us... give us messages..and for me to stumble on your thread and read your story, is truley a comfirmation of...

good morning Tillie, Thank you so much for all the thoughts and prayers, you are exactly right, you think you are prepared......but, no not really. Meds are working so far, and he is comfortable, still coherent when awake, and communitcating. One day we think, well its not long now and then...

Hi there, this is Sissy, I was wondering if there was any way I could speak with you, you mention talking "live" how do I do that?

Laurie, thank you so much for the info, you all have been our guide, support, teachers, and all in all good friends. we COULD NOT have made it through without the knowledge i have gathered here! God has rallied us, and he will continue. .unfortunately things are really not good, cant really go...

oh kim thank you very much!!! I guess I'm just grasping at straws here, but when its all you have left we start grasping!!! With all the info I have from this forum and all the freinds Ive made here, I know whats coming and i knw what to expect, ......somehow it just seem different when it comes...

Igelb, he does use a respironics AVAPS, but when we were here the last time, they contacted our ALS clinic (pulmoligst) and he told them he did not want to change the setting due to the fact that it would also change the exhaling part of it, and he didnt want the CO2 to start building up...

oh sorry, what he is needing it for is the air hunger and fear mostly, with some pain in there. he has a steel plate and 6 screws in his neck.

Thank you Tillie, that does help tremendously! When we were home, (after our last visit here) things were ok, he was doing good with the changes... then Sat. he had to go in and lay down early, and that was the last time he got up since. But we had to do a supository and the all the bm's...

hi all just wanted to update you all; we had to come back to the hospice hospital, symptoms got out of control again.... just couldnt manage at home.. hopefully we can do adjusting and be ok again...... just praying, and praying! we were giving 20mg of moriphine every hr. and before the hr was...

Very thankful for every day i can spend with my hunny!

Hi all Just wanted to say thank you for all the support, we are home now, they got his symptoms and pain under control, and we felt there was nothing more (at this time) they could do , so we made the desicison to come home... He is not doing to good, but not terrible either. Some days are just...

Hi there, my hubby has one, wouldn't know what to do with out it! It is wonderful! Make sure you learn how to turn down the settings, as things progress it will need to be turned down, ( the speed and force both adjust) but that's easy, push of a buttOn. will help greatly, we did his every...

Thank you Mark, everything is happening so fast, hard to wrap my head around....one hr.and day at a time. I guess! But thank you!