Recent content by ronney525

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    ALS Tube Feeder and Gum Disease/Consatipation

    Constipation I Use A Natural Formula Colon Clease..............keeps It Moving Along As Well As Colace, Senna, Olive Oil Etc
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    Extremly Dry Mouth - I Need Help Please

    Chin Strap Head Bands Work Great For Me
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    Bi-pap

    chin strap i use bipap ad uSE A HEADBAND AS A CHIN STRAP VERY COMFY AND SOFT EASY ON AND OFF I HIGHLY RECOMMEND OVER THOSE CONVOLUTED CONTRAPTIOMS.............
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    lite writer

    I Bought Mine On Ebay From Pals. They Too Used It Briefly. If U R Determined To Get One See If U Can Try Before U Buy.all The Press And Photos Look Great. Most Spech Therapists Only Have Printed Info. Just Trying To Be Helpful..............
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    lite writer

    Hi,i Had Litriter. Very Inconvenient For Me. Person Readingg What U Type Must Sit Opposite U. Display Only Shows Few Words At A Time.and Th Vrbal Was Just Too Wierd. It Was Also A Little Heavy After A While. I Used It Nly When I First Got It. As Muscles Weakened It Really Didnt Work For Me. If...
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    Blanket Wars

    Ok. I Need To Know If Anyone Has Come Up With A Solution For The Blanket Wars ............i Have Them Every Nite... I Am Using A Small ..kid Size,lightweight One Now....but Still Get Stuck. Thankfully Ilive In The South, But Still Get Cold At Night. Any New Offbeat, Whacky Ideas? I'm All...
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    Definitive diagnosis

    the whole thing stinks.......... however w diagnosed of als u immediately qualify for disability there is no waiting period....., as for equiptment, there are lending places through clinics. also medicare shouuld be automatic, and will cover many things w a dr. script. and its all very...
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    ALS/PBP and Communication

    yes, i've even called social security. the relay operator explains how it works to person who answers. most places are very accomodating
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    ALS/PBP and Communication

    relay call you place the call by typing the info, number etc, ... the recipient answeers theie phone, they are told it is a relay call. u then tyype your end of the convo...........it is read to them,,, they respond and that is typed to you. and on and on. the only difference is there is a...
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    ALS/PBP and Communication

    communication e-triloquist works great.free download on internet........... i had a lightwriter but did not like it or us it. i generally use a simple white board w dry erase markers. another thing to use is te internet relay calling services. its free. u call.u type and an operator reads your...
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    Can't use bipap?

    bipap hi. ive had mine 4 months and just todat it got adjusted to a comfortacle level. when i got it it had standardized type setting.it felt like my face was fillimg w air ad i coouldnt breathe fast ennuf to keep up.anyhow guy came to my house and we just kept adjusting til i felt at ease. lo...
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    bowel problems

    glycerine suppository might help.
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    Breathing Problems That Sound Weird

    hi. i get a colace liquid. ask the pharmacist...... much easier...
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    Help ?

    well, i am in the u.s. and maybe your quality of care is much better in the northern territories... i have been to one assessment clinic in the 3 yrs i have been diagnosed. and that was mostly to appease family members. it was a waste of time and definitely waste of energies. i have a family...
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    help for tounge biting?

    hi, i have had a few jaw clenching episodes... my acupuncturist showed my companion 2 spot on either side of the jaw that when pressed will unlock it immediately. thankfully i have onnly had to use it once as it is a bit painful, but it worked. there is a very tender spot wherre the upper and...
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