Recent content by Roni

Thank you,can you also hook up to internet thank you for your hslp, this would also hook up to internet so long as we had the hook up at home? Roni

I'm in Hospice where I can't get much, anyway back to my question on what type of machine to get. I heard something about getting a Laptop computer that coulr just get the software and eye gazing for it. Is it really that simple? Thanks, Roni

Hi guys, don't know if you have gotten any new updates or not, I can share my experience. I started the study that started last year. The one they did with 100 patients thru the USA. Dr Orders, taught some other drs. so the could over it in like 10 different areas. Henry Ford Hospital got so...

AL, thank you I had know idea that site was there. Looks good! Thank you for info, Roni

Hello again, I started a yahoo group (message board) for the teens. I also put, in for a chat room with a time, with MDA/ALS. Just waiting to here. Here is the address for the group, just need to sign up. Both my 14 year girls are after school...

Thank you I didn't even think of the group idea, excellent idea! Thank you! Going to do that one today. Will get back with you's. Thanks, Roni

Stu what does the shirts look like I never heard of them? Sound great! Roni

Thought you guys could give me some ideas about a message board for teen kids of us pALS. Need one for us too. But, it's been challenging for my 14 year old twin girls (have a 10 year old son too). I do go to a support group (helps alot) have talked to them but, not alot of people have teen...

Hospice and Catheter Thanks again everyone, Been busy with all these appts. I started Hospice this past Tuesday, they are so helpful and alot of services. Today, I have an appt with the urologist. So should be feeling better later today. YA! Roni

Thanks, Karin Thank you, Karin! I am going to get one, have to wait till next week. Can I ask do you have a nurse come in and change that or do you have to go in to the doctor's? Thanks, Roni

Thank you Want to thank you for suggestions, I am going to check with the hospice. I think going the catheter is going to the right thing ( I did have one of my doctors at clinic they won't do it- but going to check with my primary and MDA doctor). Not only being easier on me but, I always put...

Hello not sure if I have ever posted here before but, all of your postings have been helpful. I am at about 3 years with this. Seems like I just cannot get caught up with the progession last few months (the planning ahead) equipment wise, etc. Try to keep this short but no one else seems to get...

Just came across this site, been on many last months. I was diagnosed 11/15/05, 36 year old mother of 3 kids, twin girls age 11 and 7 year old son. This mental roller coast has been crazy as you all know. But, dealing here! Glad to find more support! Thanks Roni