Recent content by rogeriopaguilar

Yes, but I didn't get the injections yet. I thought the neuro would apply the same day but I have to wait for insurance approval. Thanks Mike and Greg for the answers.

They should study those who lives 5 to 10 years or more. Maybe they would find something common. Just guessing...

Tomorrow I will get bottox injections on my neck. Doctors diagnosis is cervical dystonia and this is the best treatment they said. I really don't know if what I have is dystonia or bulbar als and I have read some posts where pals take bottox and have bad reactions. Some of them died because of...

I think they don't know very well. On the other forum (alstdi) there is a guy who has upper motor neuron disease and he has spasms and fasciculations, so who knows? and there are the ones who has benign fasciculations which according to doctors does not mean anything...

Happy Birthday

Uol,I got such incredible answer, much more than I spected. Thanks everyone for taking your time to help a confused and helpless soul as mine. Phil, you wrote encouraging parts of the scripture that I had forgotten. Thank you for that and thanks everyone to try to help me. Tears are falling from...

Janelle X and Sharon, I am sorry you feel the same way as I do. I hope we can build our faith back, but it's been really hard at the moment. I'm 33 and single. I am seeing all my friends/family members achieving great things in life, marrying , having children, growing on their jobs and living...

Has anyone lost their fate in god (or the god of your religion) after the diagnosis? I grew up in a Christian house and always believed but since I became ill and all my prays are like doing nothing I am beginning to lose my faith. I know it was not him who put this diseases in our bodies but it...

Good News. Now they need to test in humans.

Yes, they were clean except for fasciculations and this last one detected the dyatonia. I hope they are right this time. Thanks for the answer. Rogério

So I decided to get a second opinion. After another evaluation, a new emg, a mucle biopsy (which I have never had before) and many other tests now they are saying I have cervical dystonia and chronic inflamatory miopaty and not als... And I dont know what to think...

[url=http://www.health24.com/Mental-Health/Brain/Neurological-conditions/joost-takes-part-in-secretive-international-drug-trail-20151218[/url]

I was confused with the news. This discovery is just for the sod1 type? First they say it is focused in sod1 then they say the other types form sod1 clumps too... Thanks.

I put an ice pack behind my neck when I lay down. After a few moments the spasms became less severe. It is not a solution but at least I am able to sleep now. Thank you all for the help. Rogério

I don't know what to say. The doctor who diagnosed me is from this organization but is on vacation. Maybe my diagnosis is not correct? I really hope so. I will try to up the dose of clonazepan and see what happens. When all this started I had cramps and twitches everywhere and weakness in my...