Recent content by RogerC53

  1. R

    Questions about my symptoms.

    The decision was based on my emg, Progression of The weakness and failure of muscles. Breathing and swallowing test and the standard neuro test of overactive reflexes etc. He also spent a great deal of time ruling out auto immune diseases. My emg showed lower and upper problems. I will look for...
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    Questions about my symptoms.

    Was diagnosed with MND/ALS last August and have been struggling with acceptance of the disease. I was diagnosed at Stanford by an ALS specialist (excellent doctor) who reviewed my diagnosis with his colleagues and they agreed. My problem is that some of my symptoms just don’t seem to match up...
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    Speech to text

    I am having trouble typing because of my hands and arms getting weaker. What is a good speech to text software app that I can use on my windows computer. Is there also one for an iPad? I tried to do a search but couldn’t get a specific Answer. Any help is appreciated. Stay strong, Roger
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    Finally introducing myself

    Have posted in other parts of this site in the past to get guidance and answers. Thought it was time that I introduce myself. Diagnosed about 3 months ago at Stanford Neuro Center. It took about a 1 1/2 years for the diagnosis due to my other auto immune diseases. I have also been diagnosed with...
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    Breathing issues questions???

    Had a pulmonary test and it was abnormal. The pulmonologist felt it was from motor neuron disease. She is starting me on a BiPAP machine as soon as possible. Kind of knocks my denial down. Still very hard to accept. Seems like it’s getting harder to breath every week. See my neurologist in about...
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    Breathing issues questions???

    Thanks for the replies and information, as you probably know your insights gained from your experience are very helpful for us just starting the journey. Karen, yes my case is very complicated due to all of my auto immune diseases and my exposure to the biochemicals. This is why the process has...
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    Breathing issues questions???

    I have recently been diagnosed with ALS/MND and currently having shortness of breath. It has gradually gotten worse over the last 3 weeks. I really don’t know if this is related to ALS/MND or something else. I will just be sitting and it feels like I just can’t catch my breath, like when you are...
  8. R

    Recently Diagnosed and have acceptance issues

    Thanks for the replies, they help a lot. There were several comments that struck home and could only come from others with experience. Your knowledge is appreciated. Roger
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    Recently Diagnosed and have acceptance issues

    Diagnosed in August of this year at the Stanford ALS Center. I am a 66 year old male with A LOT of other serious medical issues from a result of being exposed to bio chemical warfare chemicals when I was a child at the Dugway Proving Grounds. This is where they tested every type of bio chemical...
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    Emotional Support Books

    Anyone else exposed to very toxic substances and chemicals and then found themselves diagnosed with auto immune disorders (probably more than one)? Anyone stationed at Dugway Proving grounds in Utah?
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    Emotional Support Books

    UPDATE: Saw my ALS specialist at Stanford about 10 days ago to review the spinal tap and and other test to discuss my case. It is very complicated due to the fact that I have several auto immune diseases, Rheumatoid Arthritis, Multiple sclerosis, and Myasthenia gravis. I also had to have brain...
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    Emotional Support Books

    Thanks again for the responses. I agree that counseling is probably the best approach for now and will start ASAP. I have been involved in counseling professions in the past and worked as a school administrator for many years and seen the results of good counseling. I have supported local...
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    Emotional Support Books

    Thanks for the replys and moving it to the right section. For now I don't want to get into the exact results of all the test except to say the normal ALS test and they all point to ALS according to my ALS neuro. Just not ready to wrap my head around all of this yet. Yes a lot of it is denial and...
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    Emotional Support Books

    Did not not exactly where to put this request so forgive me if this is the wrong category. Been going to the Stanford ALS center for the past few months and it appears that they are going to diagnose me with ALS after one more test. Just want to ask a good book, video, source for emotional...
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