Recent content by Rodstew

Glad you are okay and able to keep a sense of humor about it. At least you were spared someone walking in and looking down at you laying on the floor and asking the obvious " Did you fall? " I just want to look up at them and say " No I just get down like that sometimes " Anyway I am glad you...

Thanks for all the replies. First: I was evaluated for my current and future needs. Currently I am having weakness and balance problems. I can handle that with a cane for short distances. It has taken me about 6 years to reach this point. So we felt a scooter would be good for five years at...

WOW ! Got approved for an electric scooter ! I am so happy as I have been avoiding anything that required walking any distance. I would not even go shopping with my wife on a lot of days. It gets really depressing just sitting home. We used to love to go to craft shows and flea markets as well...

bpayton, was the disibility for PLS and why do you think you were approved so quickly?

Just wondering? I have been turned down the second time and have appealed for a review with a judge on the PLS diagnosed. This will take from 12 to 24 months is what I was told. If the neuro changed the diagnosed to UMN dominant ALS would I be able to file another claim. If so it would be...

Thanks bob. Why would you say you were approved so quickly. I filed the same way.

Hi. As in my previous posts I have been diagnosed with PLS about a year. I have a lot of pain and about all the symptoms I see described in here. I have now been turned down for the second time for SSDI. They stated that they could see I could not do my current job or any other job I have been...

Where we are from ? From the home of country music ! Nashville Tn.

I also have trouble breathing. At first it was just at night. I was diagnosed with Sleep Apnea in 2005. PLS in 11/09. I also used pillows to help. I have tred a CPAP but could not tolerate it. Sounds like I may need to check into a BiPap. Todat I fell asleep sitting in a recliner and woke...

Ldn ? Hi SRAL, Just wondering what LDN is. Is it a drug or supplement ?

Welcome from Tennessee in the USA ! Sorry to hear you have to be here. I have only been a member of this site a short time but have already found it very helpful. I am sure you will also.

sral Hi. As I mentioned in my other post I too have severe pain. Mainly in my legs. I know exactly how your mother feels. It is really frustrating to try to explain it to a Dr and not feel like a junkie asking for pain pills. I take baclofen and it helps but does not stop the pain. I have...

Well I had another EMG today and the dr said it looked ok. He did say it appeared I had a little nerve blockage on side of left knee. He thought this was from a previous pinched nerve in that area. He did say that there was some weakness in the arch of my left foot but he did not see anything...

Back from Neuro visit Thanks for all the replies. I just got back from my Neuro visit and he prescribed Baclofen 10mg twice a day. I don't think I will have any problems with that as I usually require a high dosage of anything to be effective. He also scheduled me for an EMG tomorrow since it...

Thanks for the reply. My pain is a constant pain in my legs that ebbs and flows mostly due to activity. As an example I can awake in the morning and sit in a recliner most of the day and the pain is mainly in my Achilles Tendons and calves. If I get out and run errands such as grocery shopping...