Recent content by Robynnblue

  1. Robynnblue

    You can find me on facebook ...https://www.facebook.com/MommyLondon.. You are welcome to message...

    You can find me on facebook ...https://www.facebook.com/MommyLondon.. You are welcome to message or add me there...I also run the largest fb support group for BFS. Which can be found here.. https://www.facebook.com/groups/854180221302634/
  2. Robynnblue

    Hi Jram...I'm sorry to just now be getting back with you...I was unable to send you a PM so am...

    Hi Jram...I'm sorry to just now be getting back with you...I was unable to send you a PM so am leaving a message for you here...I would like to speak with you about your current situation and see if I can help sift through and see what we can figure out...Do you have fb possibly so we can add...
  3. Robynnblue

    I wouldnt say I'm still on here..I come over here once every 3 or 4 months to check my messages...

    I wouldnt say I'm still on here..I come over here once every 3 or 4 months to check my messages, and I'm doing pretty good for the most part :)
  4. Robynnblue

    No Diagnosis yet Confused?

    Your ok hun..dont worry....We will talk and you will understand whats going on and wont be so frightened by it...and I can share some things to help you cope until the symptoms calm down for you so no worries ok.. Sent you a request on fb...talk soon.. Robynn LeAnne :)
  5. Robynnblue

    Cynthia..just sent you a fb request...Hopefully I got the rite person lol

    Cynthia..just sent you a fb request...Hopefully I got the rite person lol
  6. Robynnblue

    Cynthia..just sent you a fb request...Hopefully I got the rite person lol

    Cynthia..just sent you a fb request...Hopefully I got the rite person lol
  7. Robynnblue

    Going to look for you on fb rite now hun...talk soon :)

    Going to look for you on fb rite now hun...talk soon :)
  8. Robynnblue

    I responded to your post from yesterday...U are ok but u dont need to be here...You have what I...

    I responded to your post from yesterday...U are ok but u dont need to be here...You have what I had and many others like us...Let me know how to contact you if you would like to talk :)
  9. Robynnblue

    No Diagnosis yet Confused?

    Hi Cynkevtay...You are NOT a hypochondriac...the symptoms you are having are very real and not imagined...I went through the exact same symptom list as you just described...including the shaky muscles...I can explain alot of this to you if you would like someone one to talk to about it....Leave...
  10. Robynnblue

    I sent you and email and fb request if you would like to chat there :)

    I sent you and email and fb request if you would like to chat there :)
  11. Robynnblue

    You are welcome to contact me by email...at [email protected] be happy to help you out...

    You are welcome to contact me by email...at [email protected] be happy to help you out till we can get you feeling calmer :)
  12. Robynnblue

    scared to death that this may be bulbar onset ALS. PLEASE HELP!

    Not a problem...I sent you a message on your profile page :)
  13. Robynnblue

    Do you have an email...or facebook ??

    Do you have an email...or facebook ??
  14. Robynnblue

    I need help please

    Most likely the symptoms you are having are from the virus you had...sometimes this can happen when u get a virus it can sometimes tinker around a bit with your nervous system...when this happens, it can take a while for the symptoms to subside but u may always twitch on some level...You should...
  15. Robynnblue

    scared to death that this may be bulbar onset ALS. PLEASE HELP!

    A speech pathologist is also a very good consult to have if you are truly concerned about swallowing issues...If I was you I would listen to your doctors and the advice you have received from the good folks here and run with it....You dont want to go down this road...trust me. Take care Robynn :)
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