Recent content by Robinetta

Heya, Ottawa. :) I came back in to pick up on my initial thread after a few hard months and some even more bizarre treatment by medical professionals. I finally pulled my scans and radio reports and found that I have white matter disease circa 2002, 3 bad EMGs and DDD circa 2010. I was...

*co morbid I meant. Apologies. I'm not having the best time typing or spelling.

A Comoros possibility being that of ALS, and that being the main concern, would indicate that this is an appropriate place for the topic.

Olly, OOOOOHH...psychosomatic. I don't know if its possible to do that with most of this but I don't think it's been considered. My right fingers in the middle get pulled down when I curl my knuckles to a point. Left was fine. Then I remembered something I read here about putting your hands...

Thoroughly. Prior to the EMG. I re-saw him a couple hours after. He did a big case study on me, eventually for int'l publication. I'm cirruiculum. I guess I was his "trick pony". I've seen him every year since maybe 2003 and he never so much as let a nurse take my BP or give me an injection...

Oops..forgot I cannot yet pm, so @Toka: I'm a zillionth generation "Richmonder". :) I moved to C.ville on Sept. 11, 01 and I did NOT want to. On any level. I had two toddlers to raise and "share" at that point. I miss home incredibly. I wanderin to see my best bud and go to the National/Penny...

@Paul: That's fantastic! Thank you much. Sincerely. I'll start checking off names and go over the list of candidates with Doc2 during my next session (next N.Psych appt.). He may well be able to open those doors. He surely has the gumption to ruffle the feathers of "professional protocol". I...

Thanks, BrianD. :) I have been confounded and frustrated by the system to no end today. Healthcare is changing and medical care has suddenly all gone corporate. Or it seems so, after trying to wade through the mess these past 2 years or so. The oxymoron, catch 22 is: I don't need a specialist...

Possible, Mike. Looks to be about the same boat you're in atm. It could be both, just as possibly either. Or maybe it's neither and I'm off the rails on a crazy train. Hop on in! :) My neuro involvement-balance, speech, vision, memory, sensation, etc.-resolves when inflammation recedes. My...

I was under the notion that going in for a spinal tap would lead to a definitive Dx. After reading here awhile I'm afraid I may be laboring under a misconception. I have small, symmetrical lesions on the outer cord at C2/3 per MRI (not reflected on EMG). Upper unilateral EMG has long since...

I had my 3rd done last week. The numbers are measures taken in units of 'palpitation" the needle your heart. nerve-let's call it demyelination- is indicated by numbers of 1 if you show palpitations that are under 5 (I THINK) then your level of nerve damage is still in the category of "mild". I...