Recent content by Robbin88

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    Did you ever get a diagnosis @Becca15?

    Did you ever get a diagnosis @Becca15?
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    Advice

    I said I would come back and let you know what the neurologist said. I got a clean clinical and this time reflexes were symmetrical. I have no idea what’s going on with me but I once again will try to move on. Thank you guys so much for your advice. 🙏🥰
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    Advice

    Thank you both. I have an appt next week. I would like to let you know what he says, so hopefully this thread can stay open until then. @affected hope you are right.
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    Advice

    Previous thread Ok I don’t have a diagnosis yet so I know I’m not supposed to post here but my thread was closed on the could this be als. I no longer “think” I have als I know that I do as I had actual failure the other day. I could not lift my arm up to put on my bra. It lasted a minute or...
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    Bulbar?

    Hello, I just want to update this as it might be helpful to those in the “could this be als?” Category. I’ve had twitching and cramps and stiffness for the past 14 months. 2 months ago I developed a raspy voice and some swallowing issues (choking on my saliva). I went to see the neurologist...
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    Bulbar?

    Thank you @Bestfriends14 appreciate you responding.
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    Bulbar?

    Thank you @affected. Sorry to bother you guys again. My neuro was able to see me today and as you guys told me he said to go see ent and report back to him. So ent appt is on Thursday. He did a clinical exam and strength was good but I had reduced reflexes in my arms and one reflex was...
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    Bulbar?

    Ok thank you both so much for your replies. I will see my gp, and will also try to move on. Great advice that I will take.
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    Bulbar?

    I’ve been twitching for 13 months. Also have stiffness in hands and feet and sometimes all over. Pain in quads and glutes comes and goes and involuntary moving toes that lasted for about 6 months (that is mostly gone). I have been able to get through all of this with the help of the bfs...
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    Hi just wanted to check in with you. My emg was clean but I am still cramping and twitching...

    Hi just wanted to check in with you. My emg was clean but I am still cramping and twitching. How are you doing?
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    It’s only been 2 months since symptoms started (cramping and twitching and muscle fatigue)...

    It’s only been 2 months since symptoms started (cramping and twitching and muscle fatigue). Seeing neurologist on the 16th. Will keep you posted, hope you do the same. Prayers to us both feeling better soon!
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    Did your symptoms ever resolve? Im Going through similar cramping and twitching. Thanks.

    Did your symptoms ever resolve? Im Going through similar cramping and twitching. Thanks.
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    Hi I also Have cramping and twitching. Wondering if your problems ever resolved? Thank you!

    Hi I also Have cramping and twitching. Wondering if your problems ever resolved? Thank you!
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    Hi your symptoms Sound similar to mine. Wondering if we can keep each other updated about how...

    Hi your symptoms Sound similar to mine. Wondering if we can keep each other updated about how we are doing? (email removed- per forum tos) Much appreciated!
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    Help with symptoms

    Ok I’m almost 2 months into this and I want to know if I should pursue further testing. I have intense cramping all over my body 24 hours a day. Oddly enough my twitching has gone down to practically nothing and that actually has me more worried. I had an emg 2 weeks into Symptoms and...
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