Recent content by Rob Kerr

Hello My name is Rob and I have had ALS for nearly five years. This is a great sight for getting information,opinions,and advice. Ask any questions you may have there are lots of wonderful people here willing to help. Take care Rob

Crystal My hands are really getting weak, my hands cramp and my fingers lock up in a clinched possition. I do however have normal sensations in my fingers and hands. I would ask doctors if maybe something else might be going on. Take care Rob

Eric I have talked with many people in medical fields and people with ALS and the consensus is that he is conected for profit and fraud. if it worked it would be highly regaurded as showing some success. Some pals live with this disease for 25+ years with only taking so much as a multi...

Sorry for your loss I am saddend, and wish you all the best.........Rob

Hi Crystal I have weakness in both arms and hands but only have twitches in my legs and abdomine................Take care Rob

Something people who are in this situation with employers need to also know, that even if an employer accomodates you for disability and puts you into a new possition, they can legally pay you the prevailing wage. In my case this was substantially lower going from manager to a paperwork clerk...

Americans with disabilities act You can research on the internet on the above. My companies policy was resonable accomodations, They dont have to retrain you but offer suitable positions that you can perform. Do you work for a large company? if so they can usually absorb the costs of...

Hello In my work physical labor was a large part of my job. I was an assistant manager for a large retail company so lots of the harder stuff could be delegated. I hid my illness for over two years until I was so exhausted and my performance slipped. I wish I had said something sooner because...

Hi Jessica You might want to check if there is an ALS Association in your area, it can help to meet with others who are going through the same things as you are. The diagnosis is a shock but it does get better. Think of possitive things that you can still do with your dad and it will turn it...

I have the mask with te nasal pillows, I dont have any trouble keeping my mouth closed at night so this works well for me. also mine has a humidifier which keeps the air from drying out my mouth and throat Rob

Hello I got a Bipap last August and after getting used to wearing it at night I sleep very well Take care Rob

Hi Pat I .have been on Lithium for about 2months with no side affects. I was able to work for 3 years after my diagnosed. I took good care of myself and got plenty of rest. I learned how to get things done without getting to fatigued which is what finally made me retire at age 43 Take...

I have heard that alcohol and smoking makes ALS worse and or could be one of the root causes. Has anyone come across any information about this? I have a very slow progression with the disease and my neurologist didnt seem to think it was much of a factor. I smoke less than a pack a day and...

My name is Rob, I have had ALS symptoms since late 2003. I had a mild stroke in 2004. I complained to the neurologist about the muscle weakness I had and after all the test it was determined that I had AlS. I have started taking Lithium about a week ago, My doctor at the ALS clinic perscribed it...