Recent content by rmt

I'm so sorry. It is wonderful that you had a good last day together.

I'm so sorry to welcome you here. I don't have advice for you about getting devices and care (my husband was retired military so his care was mostly at the VA). But if your PALS is having trouble with word finding and memory, I recommend talking with him in detail to find out what his wishes...

Speech changes from bulbar ALS are very noticeable. I noticed my husband's speech changes before he did. Everybody that he spoke with knew something was wrong. So yes, a speech pathologist would hear it.

This sounds similar to my husband's bulbar ALS presentation. He actually never had an abnormal EMG (which completely surprised every doctor he saw). But there were upper motor neuron signs, and eventually weakness. He didn't have a limb EMG after he started having limb involvement, so not sure...

You are really jumping ahead of yourself. It doesn't sound like the doctor thinks it is MND. There is no reason to jump to familial ALS and to start worrying about your sister and nephews. I'm sure everything that is happening with your father is very stressful. Try not to panic. Make sure to...

This sounds more like an acute issue than ALS to me (but I'm not sure doctor). Hopefully you can get transferred to BI and get more testing. I'm glad they are taking it seriously. Sending good vibes your way that they figure out what is going on quickly. And if they recommend surgery, getting a...

The impression clearly says there is no electrodiagnostic evidence of motor neuron disease. What else are you looking for from the people in this forum? Work with your doctors to figure out what is going on, but it isn't ALS.

I sold the house in Portland where my husband and I lived for the last 9 years of his life. The sale and clean out of the house went very smoothly. I cried a lot as I went through all of the things in the house. And laughed a lot too. So many memories. I thought it was going go be hard to drive...

Sorry about your health issues and your brother's diagnosis. I see you have been having symptoms since 2012. What diagnoses are your doctors considering? It would be very slow progression for ALS. Have you had an EMG? PLS seems more likely than ALS (assuming you have a clean EMG) based on the...

The neurologist (or PCP) should be able to tell you why they think you have a Degenerative neuromuscular disorder. The reasoning should be in the conclusion of the chart notes. I think they are required to give you the notes and results. I would call and push for that information. And then I...

Sorry your brother is going through this. Where was he diagnosed? I'm confused how he was diagnosed with familial ALS if he didn't have any of the genetic markers. An aunt with ALS isn't enough for your brother to have inherited any gene. Are your parents alive? I'm assuming they do not have...

My mom veers to the right when she walks. She has for a long as I can remember. It is a family joke that you better stay on her left side on walks or she will slowly walk you into a ditch. She does NOT have ALS.

Sending you and your family peace. Try to give yourself and you family a lot of grace and love. The first few weeks and months are so hard, with many conflicting emotions. It sounds like you were an amazing son and caregiver. I'm sure your dad is very proud of you. I hope you can support each...

I'm glad you are going to be seen Neurology. Hopefully they can put together a diagnostic/testing plan to figure out what is going on. I'm not a doctor but I will say that my husband had bulbar ALS, which started with speech issues, and I noticed the slurring before he did. For a long time he...

Your previous post was from 2016, so you have been worried about ALS for almost 8 years. You have had 2 clean EMGs in the last 6 months. You seem to know you have serious health anxiety. Your current symptoms suggest an acute onset of a variety of symptoms, which does not resemble ALS onset...