Recent content by RLCarlson

  1. R

    There is NO awareness after all

    NH, CRR10 There are those of us out here trying to change that way of thinking...We have had ALS patients out live there family members (one lived 20 years)...We have put together a program "Quality of Life on a Ventilator" and have actually started to get some attention from ALS clinics in our...
  2. R

    New to forum

    Was your husband a vet? What insurance do u have? The reason I am asking is because if its in your policy or he is a veteran he can possibly qualify for private duty nursing... Then at least you and he would have help with the caregiving portion. The right agency could also help manage his...
  3. R

    How do I find caregiving help?

    Lina, I have posted below the California Medicaid waiver program. ALS should classify a person as medically fragile. Depending on their requirements (note: you don't nec. have to be destitute to qualify for a Medicaid waiver program SO APPLY) one could possibly get private duty nursing which...
  4. R

    Anyone Interestested Support Group ideas...

    "Quality of life on a ventilator" has been created on facebook.
  5. R

    Anyone Interestested Support Group ideas...

    Sadiemae It all depends on the state and whether or not PDN (Private Duty Nursing) is Medicaid approved in that state. For example in NC PDN pay is comparable to other Home Health, hospice and LTAC salaries. That's is a lot of the reason for a support group there is a lot of info out there...
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    How do I find caregiving help?

    Lina, What state does your loved one live in? There is also Private Duty Nursing available dependig on the state in which you live that can be covered by private insurance, VA if they are a veteran, and Medicaid. But again it depends on your state each have different clinical qualifications...
  7. R

    Anyone Interestested Support Group ideas...

    Not spam at all. I work with trach/vent patients everyday many who have ALS. The biggest question we get asked is how or where does the money come from for these patients to be taken care of at home. I am just offering our knowledge on the subject to help others.
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    Anyone Interestested Support Group ideas...

    Hi my name is Robin Carlson I am the Director of Client and Community Affairs with Professional Healthcare Inc... We are a Private Duty Nursing Company that specializes in carig for trach/vent patients in their home. We believe that in maintaining a quality of life in the home atmospher. With...
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