Recent content by Riggz10

took that test - got a 40 what do you think?

No clue what the ALSFRS-R is - I try to believe that i don't have this. But my weakness seems to not leave. Do your doctors tell you no way like mine do? Let me know?

Thank you Nikki, as always. I have not seen the trusted neuro to talk about anything that you told me last time. I have been putting it off but I feel that I must go before I get married. I will do everything that you told me. The fact that I haven't been to an "official ALS Clinic" is something...

For all of the people who have told me to get off this site or Why am I here? I apologize to you and ask you to disregard this post unless you have kind insight. This is for Nikki, Laurie, and Mike...and a few others who have helped me along the way. I have scheduled an appointment for May 18th...

May I ask about foot drop? My right foot is so heavy - it's just getting to be so bad? I am just so weak in my legs and I cannot run. I just read the story of the NFL player Dwight Clark who was just diagnosed. It started with his hand but he told his neuros that he can't run. Pete Frates told...

Long weekend. Thank you for another reply Nikki. I have not told my neuro the things you told me to because I haven't seen him. I went to the psych for about two months and he was in contact with my neuro who assured him that I could not have this. With all the issues I have, I keep avoiding...

Hi Nikki and thanks for chiming in as always. I went to the psychologist for a few months who kept in touch with most trusted neuro who assured him many times there is no way I could have ALS even though I haven't seen my neuro in months. My fiancé doesn't want me to go see him but I think I...

Hi everyone - I am reluctantly posting again after doing my best to stay away from this website. I stayed away for the most part since my last thread but have glanced every now and then. I am back to say that I know not all is well. I am twitching everywhere and my symptoms regarding bulbar...

Nikki, I am taking this all into account and plan on doing everything you told me to do. I have mad an appt with my neuro and am looking into functional medicine doctors in the NYC area. I hope this somewhat helps me and am happy that I have a new direction to go in. It's been a whirlwind of...

Hi Mike, And thanks for responding. My most recent visit was with my most trusted neurologist. He told me he is officially stumped after he got the results of my second cervical spine MRI. He saw nothing changing in the c6/c7 region even though it still indeed had some issues. He is convinced...

So I have stayed away from here for awhile. I've glanced here and there but primarily have stayed away. The only thing that has kept me positive whatsoever are the responses I've gotten on here and the doctors telling me its not ALS. Every doctor that has told me no, I have left there happy and...

Hi Mel, I've been following your story for awhile. I am so sorry for your diagnosis. I actually have my next appt. in 45 minutes. Typing is getting harder for me too and the twitching is brutal. If you get a chance, can you look at my recent threads and let me know what you think of my...

FrJn, If you could look over my threads that would truly help. It seems that you are very well informed on this. I have many neuros and members on this telling me no way. My hands are both so weak. I twitch everywhere. I have had 5 EMG's. It has been over a year and a half. Any advice?

Hey Leo - I am so sorry to see that this happened to you. I am in a familiar boat right now. I have not been diagnosed with quite a few neuros telling me that I am fine. I am right at about a year and a half like you. My hands are both weak and I have twitching all over like you. May I ask you a...

Well I'm back. Wound up seeing a doctor who I actually read about on this site. Will keep his name to myself but the doctor was at Mount Sinai/Beth Israel in NYC. Very different from past visits - this visit they threw me to the lions right away without seeing the doctor. Started with NCS with a...