Recent content by rictak in IA

  1. rictak in IA

    I think I'm finally giving up

    7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...
  2. rictak in IA

    Feeling guilty

    Its been so long that its hard to remember. She lost the ability to stand about 6 yrs ago, and probably all movement except her neck and head about 4 1/2 yrs ago. She mostly just goes form bed to recliner via Hoyer Lift now. Her breathing is definitely affected, but her O2 levels stay good...
  3. rictak in IA

    Feeling guilty

    Been dealing with a lot of this just lately. My wife is 44 and we've been dealing with this for 7 1/2 years. I love my wife, and want the whatever is best for her, but I hate that my life is passing me by and I hate that our kids are growing up with nothing but a half of me (or less) and a...
  4. rictak in IA

    New and unsure of what to do next?

    Hi Megan. Welcome. So sorry to hear about your husband. My wife was also diagnosed young (37). That was 3 1/2 years ago. It's a struggle and a constant readjustment of what you think of as normal, but it can be done, and with a little positivity it can even be a rewarding experience, helping...
  5. rictak in IA

    Potty 101 or has this ever happened to you?

    This seems as good a place as any to ask. Has anyone here ever heard of a PALS getting a colostomy bag? My wife has not stood or pivoted for over 3 yrs now, and every time she needs to go it is Hoyer to commode (in the living room). We can occasionally get out for a few hours at a time, but...
  6. rictak in IA

    Hey Kim, Sorry, I just don't get on around here much anymore. We are still hanging in. Hope...

    Hey Kim, Sorry, I just don't get on around here much anymore. We are still hanging in. Hope you have a good Christmas. Gary
  7. rictak in IA

    Mechinical Lift

    We don't have that exact brand or model, but its still the same machine. My wife hasn't stood for 6-8 months now and we use ours for recliner-chair, chair-bed, chair-commode for every transfer we do. 10-20 times a day as well. we have several different slings we use for different manuvers...
  8. rictak in IA

    can you get through this w/o going to an ALS clinic

    We went 3 or 4 times, and while I felt I was learning new things that could help along the way, my wife felt it was too depressing and time consuming. 3 hour drive + overnight in a hotel (probably impossible now that she is 100% Hoyer) + Meals + 2 days of lost work time. In the end she...
  9. rictak in IA

    transfers

    Hoyer Lift saved my life! Fairly simple to get the hang of, real back saver.
  10. rictak in IA

    Hey Kim, sorry I haven't been returning messages very well lately. If I don't reply the instant...

    Hey Kim, sorry I haven't been returning messages very well lately. If I don't reply the instant I get a message, I just seem to forget about it altogether. My wife is unable to stand anymore, and her left arm has been all but useless for about a year or better now. Her right arm isn't much...
  11. rictak in IA

    So Cheesed Off!

    We have a 9 and a 2 yr old, and I can't turn my back without the 2 yr old "Helping" Usually by moving the Hoyer across the room, flattening the bed spread, or straightening her fingers for her. Most of the time his help just causes more work, but its so sweet and so worth it. The nine yr old...
  12. rictak in IA

    Give Yourself a Break

    Really happy to read this! I'm planning a 3 day trip out of state, and of course, I've got all the worries that go with it. I feel like I have all my ducks in a row, but still... Glad to see you were able to make it work. fingers crossed.
  13. rictak in IA

    Hey emma, sorry to hear about your husband. I don't have any advice that you havn't read...

    Hey emma, sorry to hear about your husband. I don't have any advice that you havn't read elseware before. Take advantage of his mobility, take a family vacation or two, just in case you don't get time for three or four. My wife was 37 when she was diagnosed, and we started planning very...
  14. rictak in IA

    Hey dbltree, Had to Google to find Birmingham IA, Looks like I'm basically in the opposite...

    Hey dbltree, Had to Google to find Birmingham IA, Looks like I'm basically in the opposite corner of the state, up by the Okoboji area. Just curious who your IA ALS rep is? We meet with a girl named Krista, and she has been really great to us. Seems like we're lucky here in IA, I hear some...
  15. rictak in IA

    Wheelchair

    Thats right! I ment to mention the seat elevator. Our ALS assn. recomended a local(ish) provider to us, and they really took care of EVERYTHING, They came out and measured her at our home, went through the list of every accesory she would need, now and in the future, and set up the appt with...
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