Recent content by rickson407

  1. R

    Bulbar ALS questions and insight please?

    Thank you so much Affected. I can assure you that this will be my last post and my last thread that I start. You all are so humble and yes, stern at time, but I wouldn't want it any other way. I wouldn't want someone to sugarcoat me like a candy. Again, thank you. I have learned a lot while...
  2. R

    Bulbar ALS questions and insight please?

    Thank you for your response affected. I did go to the doctor and had a barrium swallow study done with liquids and it came back fine. So I know that I keep doing this to myself but the symptoms are not just in my head unfortunately and if they are I wish I knew how to reverse it. I don't come...
  3. R

    Bulbar ALS questions and insight please?

    So I'm still having problems swallowing. I keep on chewing and chewing and it's like my swallow reflex will not kick in but when I do finally swallow it goes down just fine and I don't choke on it. So I'm confused. Also, I have no issues swallowing liquids what so ever its just solid food...
  4. R

    Here again. Questions regarding bulbar ALS.

    For anyone that has Bulbar Onset ALS can I clarify something please or if anyone knows a lot about Bulbar Onset ALS. I'll try to word this as best as possible so it can be easily understood. When they say difficulty swallowing when it regards Bulbar Onset ALS the research I've did says that...
  5. R

    Here again. Questions regarding bulbar ALS.

    Thanks Dalvin. I'll look into anything that can possibly help me get past this. Again, thanks for the recommendation.
  6. R

    Here again. Questions regarding bulbar ALS.

    Thank you Vicki. You have been more than kind and I appreciate that very much. I just didn't want to offend anyone because I know this is a site used for individuals living with ALS or care givers and family members. I will be keeping you and all the others in my prayers. Hopefully, I can...
  7. R

    Here again. Questions regarding bulbar ALS.

    I agree. I think I'll go back to the doctor and ask about possible options for medication. So your honest good opinion, you don't believe this to be Bulbar Onset ALS since it's been 7 months and no changes? Sorry, I know I sound like a fool. /:
  8. R

    Here again. Questions regarding bulbar ALS.

    Vicki, I feel as though it is always in the back of my head. If my swallowing issues would just stop that would be amazing and I could let go of the fear but since they have lingered I can't. I am always super focused on doing all kinds of tongue gymnastics, asking my friends and family if...
  9. R

    Here again. Questions regarding bulbar ALS.

    I just really hate the thought about being put on medication but you're probably right. Again, thank you and God Bless.
  10. R

    Here again. Questions regarding bulbar ALS.

    Thank you so much Vicki. I mean yes, I'm worried but all the research I've concluded points away. Also, I've been told that my Barrium Swallow test wouldn't have been good if I had Bulbar Onset ALS and true difficulty swallowing. This whole Bulbar Onset ALS fear has really taken over my life...
  11. R

    Here again. Questions regarding bulbar ALS.

    Also, I failed to mention how I'm getting 7 months since this has all started because it started in the month of May at the beginning of the month. I just had posted on here in July. Just wanted to clarify. Really hoping for some replies to this thread. :neutral:
  12. R

    Here again. Questions regarding bulbar ALS.

    Okay, where do I start. I had posted back in July of this year with my concerns regarding Bulbar Onset ALS. Well I'm still having difficulties initiating a swallow response with food only. I'll chew, chew, and chew my food and it's like my swallow will not start. I have absolutely no...
  13. R

    I sent you an email! :)

    I sent you an email! :)
  14. R

    I do have a facebook. Here is the URL: https://www.facebook.com/rickson423 Also, my email is...

    I do have a facebook. Here is the URL: https://www.facebook.com/rickson423 Also, my email is: [email protected]
  15. R

    scared to death that this may be bulbar onset ALS. PLEASE HELP!

    Thank you so much Robynn. I totally agree with you but this Bulbar ALS has me just freaked out. Apparently my age and the fact that only 25% of ALS patients start out like this points AWAY from the fact that I have this but still I can't shake the fear. My parents seem to think this is all...
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