Recent content by ricea

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    Re Visiting

    Hi Folks, The past 16 months have been a challenge for me. I had not been able to get a diagnosis during that time. I had many symptoms that presented to be similar to ALS symptoms - calf atrophy, twitching, abnormal emg, etc. My neurologist would not diagnosis me with ALS, nor would he rule it...
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    11 Months of Confusion and Stress... Please Help

    Hello Again Folks, I just wanted to let the helpful members know that I am waiting to hear on a possible genetic link to CMT. My elderly father met with his doctor and apparently was informed that he had a variation of CMT that could have been passed down to me. I have a call in to his doctor...
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    Hi Mr Simple, I think your question was a great one.. very well put. I've been wondering the...

    Hi Mr Simple, I think your question was a great one.. very well put. I've been wondering the same thing. I posted not to long ago in this forum "11 months of confusion and stress". My legs have been feeling tired and weak lately - especially my right quad. It's so hard to differentiate between...
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    Hello GryRC, It sounds like we have some similarities. I've been stressing for 11 months with...

    Hello GryRC, It sounds like we have some similarities. I've been stressing for 11 months with the twitching. Unfortunately, I've got atrophy in my calves too to go along with the abnormal emg. I'm in the watch and wait mode for another 5 months. See if you can find my post if you feel inclined...
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    Hi Poflet, I see some similarities between your symptoms and mine. I get twitching all over...

    Hi Poflet, I see some similarities between your symptoms and mine. I get twitching all over, tingling and burning in my R arch that extends to my toes and a tremor. My doctor thinks ALS is unlikely but won't rule it out. It's so stressful. Feel free to check out my post "11 months of confusion...
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    11 Months of Confusion and Stress... Please Help

    I hope so too Nikki! I will definitely keep the forum updated as to how things progress with me. Another new word I've come to be familiar with is "idiopathic"... Seems as though I could be "idiopathic" at least for a while longer.
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    11 Months of Confusion and Stress... Please Help

    Laurie and Mike, Thank you very much for your replies. The last thing I would ever want to do is come across as disrespectful or insensitive. Laurie - your comment "you don't need a diagnostic label to improve your quality of life dramatically" was constructive and helpful. Although the emg I...
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    11 Months of Confusion and Stress... Please Help

    As the title of my thread suggests, I continue to be "confused and stressed".... I'd like to share a symptom that I experience and perhaps get some insight from those who are more knowledgeable than I.... As I mentioned in my introduction, I frequently experience a lack of "juice" / energy /...
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    11 Months of Confusion and Stress... Please Help

    Thank you for the suggestion! I've been thinking about trying some massage therapy. I saw the chiropractor because he was the one who first worked with me when I suffered my lumbar injury years ago. He's a pro who I really trust and opinion I valued. Thanks again... Jon
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    11 Months of Confusion and Stress... Please Help

    Thank you very much for the thoughtful, helpful replies Nikki. Taking time out of your day to address my concerns is incredibly kind and selfless. Thank you so much and I wish you well. Jon
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    11 Months of Confusion and Stress... Please Help

    Hi Nikki, I had the emg done at mgh but Dr F was the doctor. I am being seen by Dr Reda at MGH who serves patients as part of the general comprehensive neurology team. I have been asked to play the "waiting game" until August to see how this progresses. I am really struggling with this process...
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    11 Months of Confusion and Stress... Please Help

    Hi Nikki, I have been going to MGH. Thank you so much for the reply. Here are a couple of quotes from my emg report: 1. The emg revealed normal sensory and motor nerve conduction studies in the upper and lower limbs but chronic neurogenic changes in the proximal and distal muscles in the left...
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    11 Months of Confusion and Stress... Please Help

    Thank you all for taking the time to read this. I have been looking for answers and obsessing over how I “feel” for the past 11 months. I am a 48 year old male who has been active and athletic since childhood. I am dealing with some serious neurological issues but I have yet to determine “how...
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